Two uncles on my mothers side, her 2 brothers- died of als. I started getting symptoms in my 20's. I thought it was something else though since I'm still here 13 years later. Just recently found out about an early onset type of als with slow progression. Neuros have ruled everything else out and haven't given me an answer.
The als specialist who treated my uncle in San Antonio would like to see me. When do I make the leap and go to another state to see this doctor? I guess I'm just "neuro weary" since the others just looked at me blankly and took notes. Maybe I'm just scared to make the appt.
Went from a slight limp in 1999. to a cane, to a walker, to a scooter in 2005. Can't walk. Can't stand w/o bilateral support because my balance is so bad. I'm only considering seeing a specialist because my arms/hands are getting weaker now with use and I'm choking a lot. There's a hesitancy, if you know what I mean, when I drink, before I can swallow. I'm too young for this. :?:
The als specialist who treated my uncle in San Antonio would like to see me. When do I make the leap and go to another state to see this doctor? I guess I'm just "neuro weary" since the others just looked at me blankly and took notes. Maybe I'm just scared to make the appt.
Went from a slight limp in 1999. to a cane, to a walker, to a scooter in 2005. Can't walk. Can't stand w/o bilateral support because my balance is so bad. I'm only considering seeing a specialist because my arms/hands are getting weaker now with use and I'm choking a lot. There's a hesitancy, if you know what I mean, when I drink, before I can swallow. I'm too young for this. :?: