m'leen
Member
- Joined
- May 24, 2012
- Messages
- 13
- Reason
- Learn about ALS
- Country
- BEL
- State
- belgium
- City
- brussels
Hi everyone, I've been reading around for a few days on this forum (read the stickies ;-)) and would like to get some advice on my symptoms: do I need to worry or am I just a hypochondriac?
My symptoms, apart from the exhaustion are all on the left side of my body:
-Shortness of breath after even slight exercice (like a walk or washing my hair). Started last summer.
-Since 10 days ago at night I have to rest my head high because otherwise I feel like I'm choking on mucous. I've never coughed up any mucous but I have woken up twice by the sound of someone emptying a glass with a straw- it turned out to be my mucous causing this sound. I do not snore and always sleep with my mouth shut.
-When I try to frown my nose, only the right side of my face goes up, the left sides stays lower and the muscles under my left eye starts to vibrate. My tongue feels normal.
-I often feel very weak as if the oxygen doesn't get completely into my cells
-very bad recuperation from exercice: if I do for instance seated work in a garden (weeding) for an hour or two, the next day I'm still recuperating
-Clumsiness
-Fasciculations, at first everywhere, one twitch here and the next one there, now more localized on my ankles and calves and several ones succeeding each other quickly on one spot at a time
-the little toe on my left foot feels like slurring, I especially feel it when wearing thongs
-less power in my left pinkie, last summer I had to stop the violin because of that
-bad reflexes on my left foot sole and left knee (which made my endocrinologist send me to the neurologist)
-absent reflex on the left side of my stomache, very strong reflex on the right side
-other symptoms (blurry eyesight, itching on hands and feet, fatty acid test turned out rather alarming: 19 instead of the 5 tot 10 range considered normal)
I know there's probably no relation but I have autoimmune problems (vitiligo and male pattern hairloss treated with rogaine) and my father has been suffering from a progressive neurological disease (Nonne-Marie syndrome) for the last 30 years, he's in a wheel chair now.
The neuro did an EMG but it tested negative, however she only tested the right side of my body where I do not experience problems apart from the mucous. My right wrist took extensive stimulation before the desired curbs appeared on the EMG. The eight of June I'm having an IRM.
Sorry for being so long. I would like to believe all these symptoms are due to depression, and not the other way round, the depression coming from my body feeling something's seriously wrong...
My symptoms, apart from the exhaustion are all on the left side of my body:
-Shortness of breath after even slight exercice (like a walk or washing my hair). Started last summer.
-Since 10 days ago at night I have to rest my head high because otherwise I feel like I'm choking on mucous. I've never coughed up any mucous but I have woken up twice by the sound of someone emptying a glass with a straw- it turned out to be my mucous causing this sound. I do not snore and always sleep with my mouth shut.
-When I try to frown my nose, only the right side of my face goes up, the left sides stays lower and the muscles under my left eye starts to vibrate. My tongue feels normal.
-I often feel very weak as if the oxygen doesn't get completely into my cells
-very bad recuperation from exercice: if I do for instance seated work in a garden (weeding) for an hour or two, the next day I'm still recuperating
-Clumsiness
-Fasciculations, at first everywhere, one twitch here and the next one there, now more localized on my ankles and calves and several ones succeeding each other quickly on one spot at a time
-the little toe on my left foot feels like slurring, I especially feel it when wearing thongs
-less power in my left pinkie, last summer I had to stop the violin because of that
-bad reflexes on my left foot sole and left knee (which made my endocrinologist send me to the neurologist)
-absent reflex on the left side of my stomache, very strong reflex on the right side
-other symptoms (blurry eyesight, itching on hands and feet, fatty acid test turned out rather alarming: 19 instead of the 5 tot 10 range considered normal)
I know there's probably no relation but I have autoimmune problems (vitiligo and male pattern hairloss treated with rogaine) and my father has been suffering from a progressive neurological disease (Nonne-Marie syndrome) for the last 30 years, he's in a wheel chair now.
The neuro did an EMG but it tested negative, however she only tested the right side of my body where I do not experience problems apart from the mucous. My right wrist took extensive stimulation before the desired curbs appeared on the EMG. The eight of June I'm having an IRM.
Sorry for being so long. I would like to believe all these symptoms are due to depression, and not the other way round, the depression coming from my body feeling something's seriously wrong...