Hello, I have just registered with the forum, after about 4 1/2 months of progressive symptoms. I have just seen my gp so far , who is very sympathetic and as helpful as she can be , ie I have a neuro referral appt in about 2 weeks . In the mean time I am scaring myself to the point of insomnia with the thought ( belief is probably nearer to it , in truth ) that I have ALS.
My symptoms started with a 'heavy' rt leg , feeling tight behind my knee and momentary lack of co-ordination. This became more pronounced and frequent and was sometimes accompanied by a feeling of dizziness. Next , the feeling started to spread over my rt side , like a sort of wave , involving my rt arm too and resulting in slurred speech , and then it would go, in the space of about 10- 15 seconds . This is still occurring , becoming more frequent and pronounced. The frequency varies , but at worst it can reccur after a few minutes. I have also started with muscle twitches in the last few days - worst in my left calf but can be anywhere. I don't feel any particular muscle weakness , it's more lack of co-ordination , eg difficulty in putting a cup down straight sometimes. Also , at night I sometimes feel a sort of 'buzzing' feeling all over.
In between times I feel quite normal ( if rather tired and stressed ! ) . I would be very grateful for any insight into this from people who really understand what ALS feels like . I apologize for the long e-mail but I wanted to make it as accurate as possible.
My main question involves the on-off nature of the symptoms - can ALS manifest that way ? The symptoms are more likely to kick in when I have just got up from resting or /and are particularly stressed.
Many thanks for your time and patience - I will be grateful for any answers !
Thanks again , Sue