glupavomomiche
Distinguished member
- Joined
- Sep 25, 2011
- Messages
- 282
- Reason
- PALS
- Diagnosis
- 09/2011
- Country
- US
- State
- Texas
- City
- Podunk
I'm, like, a 33 year old female, and I'm not in good health. I have a lot of weakness all over, I have foot drop, I can't walk anymore without a brace and a cane or walker, and I have trouble swallowing and eating. I went to LOTS of neuros, and they were like, OMG, you have ALS, you're gonna die in a few years. And I was like, no freakin' way, I don't believe you. I know how to use the inter web and I have a BS in geology where I learned how to use a search engine, so I looked it up, and KNOW I don't have it.
The things is, I have these twitches, like, all over me. They drive me insane! They bother me all day while I'm, like, brushing my hair and putting on makeup and stuff. They drive me crazy when I'm trying to eat and my tongue is twitching and doesn't move the food around in my mouth anymore. And they really make me bonkers when I'm lying in bed at night and just twitching away. I, like, can't even sleep anymore!
I'm REALLY REALLY scared that I might have benign fasciculation syndrome (BFS). I used my BS degree and looked it up on the inter web and it really sounds like what I have, especially now that I have anxiety 'cause I think, no I KNOW, I have it.
I would REALLY appreciate y'alls opinions. Especially those of you who have symptoms like mine. I'm sure y'all know WAY MORE than those stupid neurologists who told me I have ALS. SO PLEASE tell me you think it's BFS, ok? Thanks, y'all are, like, AWESOME!
The things is, I have these twitches, like, all over me. They drive me insane! They bother me all day while I'm, like, brushing my hair and putting on makeup and stuff. They drive me crazy when I'm trying to eat and my tongue is twitching and doesn't move the food around in my mouth anymore. And they really make me bonkers when I'm lying in bed at night and just twitching away. I, like, can't even sleep anymore!
I'm REALLY REALLY scared that I might have benign fasciculation syndrome (BFS). I used my BS degree and looked it up on the inter web and it really sounds like what I have, especially now that I have anxiety 'cause I think, no I KNOW, I have it.
I would REALLY appreciate y'alls opinions. Especially those of you who have symptoms like mine. I'm sure y'all know WAY MORE than those stupid neurologists who told me I have ALS. SO PLEASE tell me you think it's BFS, ok? Thanks, y'all are, like, AWESOME!