lifeisgood
New member
- Joined
- May 14, 2012
- Messages
- 8
- Country
- US
- State
- MO
- City
- DeSoto
Hello, First I can't believe I am actually posting on this thread. And I feel so very sad for those that have actually been diagnosed with disease and what incredible strength you all have. Any insight you can give me would be appreciated.
In a nutshell, I am 34 and was treated for metastatic thyroid cancer in 2010 with radioactive iodine. One year later, my muscles became progressively weak bilaterally but more on the left side. I am basically weaker on the left side from head to toe. My posture is poor and it is hard to hold myself up. My left leg, I believe is the weakest of all, but it is hard for me to really tell. When I work myself too hard, it feels like my throat swells and it makes it hard to swallow. And it is the littlest of things that wipe me out. This is very frustrating for me as I used to be so active. I still do as much for myself as I can. I can do the dishes, but often can not hold up the dishes to wash them. I can still type but often my left hand "pushes" the keys with nothing showing up. I can barely climb two stairs at my house and often become completely immobile with any change in incline of the ground. I have minor foot drop in my left foot as well. I was examined by a neurologist, who made me jog with him, which i couldn't do but rather dragged by left leg alongside me. And was having to use him to even keep myself from falling. To which he said my muscles were okay and said it was psychogenic. This disturbed me, especially when he put in his report that I could run well with assistance. I felt he totally misrepresented me. It was very disheartening. Prior to that I saw a neuro whose full workup showed extreme muscle weakness, so I feel at a loss. I did have an emg which showed decreased amplitude in the motor peroneal nerve. I know that when they did the emg they couldn't find a quiet muscle and moved to my back stabbing 5 times before they found a quiet muscle. I have had my thryoid and all electrolytes checked which has come out ok. I have had an mri which has come out ok. I Just don't know where to go from here. I am currently doing physical therapy, which shows extreme muscle weakness, and leaves me having to sleep for 2 days from extreme fatigue. As I type this my left fingers aren't cooperating. So, I guess this will be it for now. I appreciate any insight. Thank you so much
In a nutshell, I am 34 and was treated for metastatic thyroid cancer in 2010 with radioactive iodine. One year later, my muscles became progressively weak bilaterally but more on the left side. I am basically weaker on the left side from head to toe. My posture is poor and it is hard to hold myself up. My left leg, I believe is the weakest of all, but it is hard for me to really tell. When I work myself too hard, it feels like my throat swells and it makes it hard to swallow. And it is the littlest of things that wipe me out. This is very frustrating for me as I used to be so active. I still do as much for myself as I can. I can do the dishes, but often can not hold up the dishes to wash them. I can still type but often my left hand "pushes" the keys with nothing showing up. I can barely climb two stairs at my house and often become completely immobile with any change in incline of the ground. I have minor foot drop in my left foot as well. I was examined by a neurologist, who made me jog with him, which i couldn't do but rather dragged by left leg alongside me. And was having to use him to even keep myself from falling. To which he said my muscles were okay and said it was psychogenic. This disturbed me, especially when he put in his report that I could run well with assistance. I felt he totally misrepresented me. It was very disheartening. Prior to that I saw a neuro whose full workup showed extreme muscle weakness, so I feel at a loss. I did have an emg which showed decreased amplitude in the motor peroneal nerve. I know that when they did the emg they couldn't find a quiet muscle and moved to my back stabbing 5 times before they found a quiet muscle. I have had my thryoid and all electrolytes checked which has come out ok. I have had an mri which has come out ok. I Just don't know where to go from here. I am currently doing physical therapy, which shows extreme muscle weakness, and leaves me having to sleep for 2 days from extreme fatigue. As I type this my left fingers aren't cooperating. So, I guess this will be it for now. I appreciate any insight. Thank you so much