Hello everyone,
I hope my friends here are doing well. I stopped coming here because I don't have an ALS diagnosis. But unfortunately, my problems continue and are still slowly getting worse. My muscle fatigue is pronounced, I have lost control of some of the muscles around my mouth, my muscles shake and ache, and the fasciculations are as intense as ever.
Here's the dilemma I'm having. I know that high cholesterol can slow the progress of ALS. While I still don't think I have ALS, I am concerned that I have something related. I don't know, doctors don't know; it's all speculation. But one of the reasons I feel that my progress has been so slow (not better, just slow progression) is because I've been able to put on weight and keep my cholesterol high.
Now part of me is wondering if my high carb diet isn't contributing, or even causing, my problems. I came across a site that said diets that are high in coconut oil can help many neuromuscular problems, and diets that are high in flour-based-carbs can make them worse.
It's hard to know where to go for good info, because the internet is jam-packed with BS, but doctors in western medicine really are inept when it comes to nutrition and non-pharmaceutical treatments.
Part of me wants to lose weight and exercise, but in my experience, those have made my symptoms worse. And I don't want to speed up progression of whatever-this-is.
The other part wants to aggressively change my diet, to see if a cleanse and a total rearrangement of my food intake makes a difference.
Has anyone in the ALS-like-symptoms-but-not-ALS camp had any luck with diet or vitamin experiments? Any other advice out there?
Many thanks,
Andy
I hope my friends here are doing well. I stopped coming here because I don't have an ALS diagnosis. But unfortunately, my problems continue and are still slowly getting worse. My muscle fatigue is pronounced, I have lost control of some of the muscles around my mouth, my muscles shake and ache, and the fasciculations are as intense as ever.
Here's the dilemma I'm having. I know that high cholesterol can slow the progress of ALS. While I still don't think I have ALS, I am concerned that I have something related. I don't know, doctors don't know; it's all speculation. But one of the reasons I feel that my progress has been so slow (not better, just slow progression) is because I've been able to put on weight and keep my cholesterol high.
Now part of me is wondering if my high carb diet isn't contributing, or even causing, my problems. I came across a site that said diets that are high in coconut oil can help many neuromuscular problems, and diets that are high in flour-based-carbs can make them worse.
It's hard to know where to go for good info, because the internet is jam-packed with BS, but doctors in western medicine really are inept when it comes to nutrition and non-pharmaceutical treatments.
Part of me wants to lose weight and exercise, but in my experience, those have made my symptoms worse. And I don't want to speed up progression of whatever-this-is.
The other part wants to aggressively change my diet, to see if a cleanse and a total rearrangement of my food intake makes a difference.
Has anyone in the ALS-like-symptoms-but-not-ALS camp had any luck with diet or vitamin experiments? Any other advice out there?
Many thanks,
Andy
