and still ...

[gillos]

After being gone for a while I am back here.

I already have symptoms since end of 2009.
Suddenly I started having problems my legs, a slow progression of weakness.

I had one dirty emg done by normal neurologist and two clean ones at a specialist.
I still have ongoing fasciculations everywhere.

The last couple months I start to have other problems.
My fingers at my right hand start to have weakness signs...
Things go more difficult ... especially opening a bag of chips
They are also feeling strange, like spasms.
When i type on a keyboard i feel strange in my fingers, i can still use them but its like they are getting strange pulses and move diffirently.
Since a couple weaks ago my neck muscles are hurting too when i turn because of weakness.
also my shoulder started to be very weak.

I am not losing weight, but all muscle tone is completly fading away, especially fore arms.

I have scheduled another meeting with an mnd but without referal of the general medic.
So i decided to make the appointment myself.

Is it still necessary to continue looking in the direction of an mnd ?
My last clean emg was a year ago by now, byt the weakness is still spreading and progressing.

 

[LizT]

It doesnt matter if your last EMG was a year ago. You said you were having symptoms since 2009. If it were ALS, it wouldve been picked up then, as the EMG picks up on things that the patient doesnt even notice.
Also, its mid 2012. Most likely, if it were ALS, you would be significantly disabled by now. Not just "feeling" weak and having strange feelings.
Best of luck

 

[gillos]

I am sorry, i should have specified that I didnt mean ALS but a mnd in general, includig pls or ...

I need to find a cause and solution and dont know how to continue

 

[HelenL]

Personally, I would go again, but as Liz said, the EMG picks up the problem before you even notice it. I would also look at other things like Lyme Disease if you could have been exposed at all, I hear that can do neuro things to your hands as well...

Good luck, hope they find it to be something else.

 

[Toto's Dorothy]

I agree with Liz and Helen. The EMG would have already picked up on it . But you did mention your first 1 being dir ty. Did you ever get an explanation for it? Have you had blood work, MRI's or any other testing? I would certainly want to be seen since you are having different symp toms, but it doesn't mean you have it. There are hundreds of different neurological problems out there.

Good luck,

 

[Alyoop]

I agree.....doesn't matter what's going on, you should see your doctor if you feel things are getting worse. A good clinical examination will go a long way to allay your fears. But please do, listen to your doctor and don't leave his office until you are happy that you have all your queries answered.

 

[gillos]

I agree with Liz and Helen. The EMG would have already picked up on it . But you did mention your first 1 being dir ty. Did you ever get an explanation for it? Have you had blood work, MRI's or any other testing? I would certainly want to be seen since you are having different symp toms, but it doesn't mean you have it. There are hundreds of different neurological problems out there.

Good luck,

The first one was pretty unclear.
He tested me and said, thats not good i'll have to refere you immediatly to a specialist.
I only remember him saying you have denervation in your legs.

Thats when the ball of fear started rolling

 

[gillos]

I have made an appointment for the 29th.
Must be honest that I am pretty scared for the outcome.

If the emg is clean again i know that ALS def. is ruled out.
If the reflex tests also are clean, i guess i can rule out every neurological disease ?

als, pls, ms .. ?