jjgevf
Member
- Joined
- Apr 3, 2011
- Messages
- 14
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- LA
- City
- Ball
Well, the last time I was here I told everyone I would be going to see my doctor about my swallowing problems, muscle twitching and cramping. I finally got in to see my family doctor, which has put me through all kinds of test and auto immune test for Lupus and anything else she could think off. Ive had tons of blood work as well, all came back good. Except I'm anemic. She's very concerned about my symptoms and said I needed to see a neuro, ask if I had one I wanted to see, or wanted her to choose. I told her about Dr. DeAlvare in Lafayette. Someone on here told me about him. He's the ALS dr. at the ALS chapter in Lagayette. I wanted to see someone that specializes in ALS from the get go and either set my mind at ease once and for all or find out my worst fear is true! I go to see him in 3 weeks and I know it's going to be the longest 3 weeks! I talked to Sherry the medical coordinator today from the ALS clinic, she's the one that makes the appointments. I had to go over all my symptoms with me, I ask if my symptoms sounded like ALS and she said yes, kept talking about after it was confirmed, which now has me terrified to say the least! I ask her a lot of questions, she would say that sounded like their patients and then no some of it don't? I know she can't diagnosis me, I just guess I wanted to hear, it don't sound anything like ALS to me. She said everyone I'd different and progresses different. I ask about the twitches before weakness, which if I have any weakness anywhere, it's slight and not something I've noticed. She said you can have the widespread twitching without noticing and weakness. She told me about a womans that's had it for 12 years, hers was a slow progression. Sorry to be rambling, I'm just so nervous about all of this. It's causing a great deal of anexity. Can't believe I've waited a year from my first symptom to get to this place! I also have a swallowing test next Wednesday. Hope that sheds some light on this. For everyone that's had one, what would point to or away from ALS. Thanks for letting me vent, hoping in 3weeks I get good news and can put to bed the fear of ALS once and for all!