Kitchener
Active member
- Joined
- Mar 29, 2011
- Messages
- 88
- Reason
- PALS
- Diagnosis
- 03/2011
- Country
- AU
- State
- Western Australia
- City
- Perth
Hello All
Another round of test results are in:
I don't have SMA type 4 (genetic test normal)
Another dirty EMG (left arm no good, but left leg OK)
Armed with all the accumulated tests to date, and my (thankfully) slow progression, my neuro has now postulated I have something she calls "Restricted anterior cell disorder"
Apparently this is quite good news, as there isn't any evidence that the disorder (as opposed to the disease) will cause a material impact on life expectancy
I can expect my arms to progressively deteriorate over time (symptoms restricted to the right hand at present and getting worse there, with perhaps a bit of weakness in the bicep). The ultimate level of disability is not known, but could range from not so bad to totally useless.
If I'm lucky, it won't spread to the legs. If I'm not, it will.
I'm curious as to whether anyone has heard of this condition (I'm starting to worry my neuro is making things up as she goes along!)
Many thanks
Kitchener
Another round of test results are in:
I don't have SMA type 4 (genetic test normal)
Another dirty EMG (left arm no good, but left leg OK)
Armed with all the accumulated tests to date, and my (thankfully) slow progression, my neuro has now postulated I have something she calls "Restricted anterior cell disorder"
Apparently this is quite good news, as there isn't any evidence that the disorder (as opposed to the disease) will cause a material impact on life expectancy
I can expect my arms to progressively deteriorate over time (symptoms restricted to the right hand at present and getting worse there, with perhaps a bit of weakness in the bicep). The ultimate level of disability is not known, but could range from not so bad to totally useless.
If I'm lucky, it won't spread to the legs. If I'm not, it will.
I'm curious as to whether anyone has heard of this condition (I'm starting to worry my neuro is making things up as she goes along!)
Many thanks
Kitchener