Marcella
New member
- Joined
- Mar 5, 2012
- Messages
- 6
- Reason
- Learn about ALS
- Country
- UK
- State
- NY
- City
- LO
Hello
This is my 1st post but I have been lurking here for a while. My problems started a couple of months ago and while on a rational level I feel that I am most likely ok, I have a niggling feeling that I am not.
I got a twitch in my foot one day that didnt go away, after about a week I looked up 'twitching' and it brought me to ALS, this was in December some time. Since then, the twitching has become widespread and regular (some days there is more is more twitching in more places than others). Most of the twitching is in my right foot, at the side of my instep. I also get twiches on my left foot, thighs, calfs, hands, arms, buttocks, ribs and tongue. The twitches are usually singular in so far as it will twitch once and then stop and then some time later is will do it again. I have got a few multiple twitches in my hands and ribs but that doesnt happen as often.
My tongue is probably worrying me the most, it doesnt twitch or fasticulate while I am looking it at rest in my mouth, however it does when I stick it out and sometimes I can feel it twitching in my mouth(dont know if it is at rest or not when this happens). The tongue twitch sometimes happens after having a hot drink.
In the last couple of weeks I have developed a strange swallow. When I swallow it is like I am gulping and my throat makes a noise. This happens with liquids only, it is like sometimes I am swallowing too soon and the liquid doesnt go into to the back of my mouth. I have had no choking episodes or anything that would in anyway resemble choking.
I am experiencing some weakness in my left arm and left leg, however as this is a physical thing that I am feeling I am not sure if it in in anyway relevant.
I have been to my primary care physician who really hasn't given me any kind of reassurance, she just told me I am fine and she just looked at my tongue and said I was ok, she didnt do any kind of neurological examination and didnt feel that a neuro consultation wasnt necessary.
I suppose my question here is do the above symptoms make any sense and do you think I should be worried, my doctor wasn't remotely worried when I told her the symtoms and my concerns about mnd, but surely some sort of a neuro exam was warranted, or are the symptoms just not those associated with ALS and if not it really does hightlight the stupidy of reasearching symtoms on line.
Thanks in advance for your time and insight.
By the way, I am a 39 year old female in otherwise pretty good health, only other medical problem I have is chronic sinusitus for about 20 years.
This is my 1st post but I have been lurking here for a while. My problems started a couple of months ago and while on a rational level I feel that I am most likely ok, I have a niggling feeling that I am not.
I got a twitch in my foot one day that didnt go away, after about a week I looked up 'twitching' and it brought me to ALS, this was in December some time. Since then, the twitching has become widespread and regular (some days there is more is more twitching in more places than others). Most of the twitching is in my right foot, at the side of my instep. I also get twiches on my left foot, thighs, calfs, hands, arms, buttocks, ribs and tongue. The twitches are usually singular in so far as it will twitch once and then stop and then some time later is will do it again. I have got a few multiple twitches in my hands and ribs but that doesnt happen as often.
My tongue is probably worrying me the most, it doesnt twitch or fasticulate while I am looking it at rest in my mouth, however it does when I stick it out and sometimes I can feel it twitching in my mouth(dont know if it is at rest or not when this happens). The tongue twitch sometimes happens after having a hot drink.
In the last couple of weeks I have developed a strange swallow. When I swallow it is like I am gulping and my throat makes a noise. This happens with liquids only, it is like sometimes I am swallowing too soon and the liquid doesnt go into to the back of my mouth. I have had no choking episodes or anything that would in anyway resemble choking.
I am experiencing some weakness in my left arm and left leg, however as this is a physical thing that I am feeling I am not sure if it in in anyway relevant.
I have been to my primary care physician who really hasn't given me any kind of reassurance, she just told me I am fine and she just looked at my tongue and said I was ok, she didnt do any kind of neurological examination and didnt feel that a neuro consultation wasnt necessary.
I suppose my question here is do the above symptoms make any sense and do you think I should be worried, my doctor wasn't remotely worried when I told her the symtoms and my concerns about mnd, but surely some sort of a neuro exam was warranted, or are the symptoms just not those associated with ALS and if not it really does hightlight the stupidy of reasearching symtoms on line.
Thanks in advance for your time and insight.
By the way, I am a 39 year old female in otherwise pretty good health, only other medical problem I have is chronic sinusitus for about 20 years.