jfit
Member
- Joined
- Feb 21, 2012
- Messages
- 15
- Reason
- Learn about ALS
- Country
- AU
- State
- nsw
- City
- sydney
Hi everyone, I have been on here lookinbg at these posts for a few weeks now and am actually loathed to be posting here about the do I have's and asking ppl who actually do have to face the terrible facts of this disease on a daily basis about it, but waiting for my next Neuro app is driving me insane and it is really impacting my poor kids with me being in such a frazzle so I guess Im just going to post.
For a few months I have noticed that my right side has felt different to my left I couldn't put my finger on it so I just ignored it. I started noticing trouble coordination my right hand like when putting a fork into my mouth sometimes missing, toothbrush flying out of my mouth into my cheek and so forth. I am having more and more instances where my foot just gets caught on the ground and I stumble. Its not constant but it happens more frequently now.
I do sometimes find myself out of breath for no reason and like its hard to pull a breath in, I have had whooping cough in the past so this may not even be a symptom just a residual affect of this.
I have always been a good typer and can touch type pretty well, but a few months ago I noticed that now I hit the key to the right all the time when I am not looking at the keyboard and cannot touch type with much accuracy anymore.
I am having muscle cramps in my legs and arms, more so on the right side but also the left. I also have twitches but they are all over twitches that only last for a few moments so I believe these are nothing to worry about from what I have read.
The past few weeks my muscles in arms and legs have bee fatiguing very very easily just walking, or brushing my teeth or writing seems to be exhausting and I have to have a rest. When writing my hand seems to get very stiff and like I am unable to open it very well after writing for a while.
My joints hurt in my fingers and ankle. This has been happening for over a year now though and comes and goes in severity. But my right ankle has started hurting constantly and it runs down into my foot and up into my calf. I feel like I always have to crack it for some reason.
My legs after sitting and resting are stiff and hurt a lot when I first get up and it is hard to move for a bit until they kind of warm up I guess. My legs and arms feel heavy on and off.
Also I know these symptoms arnt really part of MND but I will include them anyway. I am having a lot of memory problems and also ALOT of problems when looking for the right words, I say things like dinglebell when really Im trying to say doorbell, or just go totally blank and have to wait and try and remember what I was saying.
I also have slurred speech and trouble getting people to understand me latley like Im mumbling I guess.
Can anyone relate to this, or have any advice. I have had alot of tests and am currently waiting to go back to the neruo after getting MRI and CAT scan which were both clean although they were done without contrast. I guess he will be doing a EMG on my nect visit. Do they hurt?
Thanks in Advance
oh and my limbs mainly my arms go to sleep very easily now when I just lean on them they fall asleep or I wake up laying on my back my arms on my stomach and they are completely dead its worry's me alot. And so do my legs but is mainly only when I am sitting on the toilet (weird I know).
For a few months I have noticed that my right side has felt different to my left I couldn't put my finger on it so I just ignored it. I started noticing trouble coordination my right hand like when putting a fork into my mouth sometimes missing, toothbrush flying out of my mouth into my cheek and so forth. I am having more and more instances where my foot just gets caught on the ground and I stumble. Its not constant but it happens more frequently now.
I do sometimes find myself out of breath for no reason and like its hard to pull a breath in, I have had whooping cough in the past so this may not even be a symptom just a residual affect of this.
I have always been a good typer and can touch type pretty well, but a few months ago I noticed that now I hit the key to the right all the time when I am not looking at the keyboard and cannot touch type with much accuracy anymore.
I am having muscle cramps in my legs and arms, more so on the right side but also the left. I also have twitches but they are all over twitches that only last for a few moments so I believe these are nothing to worry about from what I have read.
The past few weeks my muscles in arms and legs have bee fatiguing very very easily just walking, or brushing my teeth or writing seems to be exhausting and I have to have a rest. When writing my hand seems to get very stiff and like I am unable to open it very well after writing for a while.
My joints hurt in my fingers and ankle. This has been happening for over a year now though and comes and goes in severity. But my right ankle has started hurting constantly and it runs down into my foot and up into my calf. I feel like I always have to crack it for some reason.
My legs after sitting and resting are stiff and hurt a lot when I first get up and it is hard to move for a bit until they kind of warm up I guess. My legs and arms feel heavy on and off.
Also I know these symptoms arnt really part of MND but I will include them anyway. I am having a lot of memory problems and also ALOT of problems when looking for the right words, I say things like dinglebell when really Im trying to say doorbell, or just go totally blank and have to wait and try and remember what I was saying.
I also have slurred speech and trouble getting people to understand me latley like Im mumbling I guess.
Can anyone relate to this, or have any advice. I have had alot of tests and am currently waiting to go back to the neruo after getting MRI and CAT scan which were both clean although they were done without contrast. I guess he will be doing a EMG on my nect visit. Do they hurt?
Thanks in Advance
oh and my limbs mainly my arms go to sleep very easily now when I just lean on them they fall asleep or I wake up laying on my back my arms on my stomach and they are completely dead its worry's me alot. And so do my legs but is mainly only when I am sitting on the toilet (weird I know).