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becool

New member
Joined
Dec 16, 2011
Messages
3
Reason
Learn about ALS
Country
Kor
State
Seoul
City
Seoul
Hello
First of all, i can't speak Speak english well. I apologize.
I'm 29 male, my symptom started about 6 month ago

Earlier-june/ left elbow fasticulations (a few days later, it's gone)
left calf fasticulations and globus pharyngis
Mid- june/ swllowing problem (only solid)
Earlier- july/ first Emg (both arm&leg) nomal , no UMN sign

Earlier-august / swallowing problem& globus pharyngis is gone
fasticulations get worse (whole body)

Mid - september/ speech Problem (pronunciation Get entangled)
My Tongue feel stiff and swallowing problem return
Later - september/ second EMG (left hand & calf) nomal, no UMN sign

Mid - october/ speech problem is gone but swallowing problem continue

Earlier- novemver/ hospitalization exam(best neuro in korea)
Brain&neck MRI, blood test, gene test, NCV all nomal
EMG(Limb, neck, jaw, spinal) but did not tongue (Worried) nomal
Clinical exam nomal( jaw jedk,babinski, tendon replex, clonus)
Did not gag replex (i feel decrease)

This month/ swallowing problem continued(solid only)
speech problem return( come and go)
Eustachian dysfunction developed(clogged)
Feel Excessive saliva( sometimes)
Fasciculation is get better

Does this sound like bulbar or limb als?
Do you think I should request tongue Emg?
I and my fiance really really worried. I need your help

Many thanks for reading this.
 
Sounds like too much Dr. G o o g l e and not enough time spent listening to real flesh and blood doctors. You don't have ALS. You never had ALS. And you won't get ALS with the symptoms you have. Have a nice life.
 
Thanks Tr
Eustachian problem developed after receiving EMG,so i think "i need tongue EMG"
Because i've read in a post from this forum " clean tongue EMG=no bulbar" "clean limb EMG= no limb onset, bulbar avaliable" is it correct?
Any way thanks Tr "you never had ALS" it is good to hear that sound!
 
No you don't NEED any more EMG's. You have had plenty of tests done, you do not have any sort of ALS, with such a normal battery of tests. Believe your expert doctor.
 
Thanks alyoop i wll try to extricate. Thanks
God blees you everybody
 
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