stvhck
Active member
- Joined
- Apr 19, 2011
- Messages
- 44
- Reason
- Learn about ALS
- Country
- US
- State
- CA
- City
- Irvine
Hello All,
I posted a few times before and truly appreciate your advice and insight. For the sake of those who already know my situation...I will summarize my situation.
A little over one year ago, I suffered some kind of neurological phenomena associated with a vaccine. Symptoms are: 24x7 bi-lateral calf twitches, random muscle spasms (myoclonus), muscle "stiffness", and cramping widespread in my body at times. I have had a battery of blood tests, 3 EMGs (earlier this year 2011), and C Spine & L Spine MRIs...nothing conclusive, just autoimmune markers, minor positive sharp waves in lumbar paraspinal, and lumbar stenosis found on the MRI.
I am truly frustrated because I have these persistent symptoms yet no definitive diagnosis or medical insight. I avoid reading symptoms on Google but i do try to understand at a high level the possible cause(s) of nerve/muscle irritation.
My question(s) for the forum...what approach should I take with my doctor tomorrow to seek a diagnosis? Are there specific questions that others have asked on a second visit that might bring more clarity? Aside from an EMG are there additional test that I can request ( ex.antibodies against potassium channels in the body)?
I appreciate any and all feedback/advice. Thank you and God bless.
Steve
I posted a few times before and truly appreciate your advice and insight. For the sake of those who already know my situation...I will summarize my situation.
A little over one year ago, I suffered some kind of neurological phenomena associated with a vaccine. Symptoms are: 24x7 bi-lateral calf twitches, random muscle spasms (myoclonus), muscle "stiffness", and cramping widespread in my body at times. I have had a battery of blood tests, 3 EMGs (earlier this year 2011), and C Spine & L Spine MRIs...nothing conclusive, just autoimmune markers, minor positive sharp waves in lumbar paraspinal, and lumbar stenosis found on the MRI.
I am truly frustrated because I have these persistent symptoms yet no definitive diagnosis or medical insight. I avoid reading symptoms on Google but i do try to understand at a high level the possible cause(s) of nerve/muscle irritation.
My question(s) for the forum...what approach should I take with my doctor tomorrow to seek a diagnosis? Are there specific questions that others have asked on a second visit that might bring more clarity? Aside from an EMG are there additional test that I can request ( ex.antibodies against potassium channels in the body)?
I appreciate any and all feedback/advice. Thank you and God bless.
Steve