clichti
Active member
- Joined
- Sep 15, 2011
- Messages
- 61
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
- City
- Toronto
Hi All,
Been skulking around the forum for two months. As many others have stated, the last thing I want to do is to inadvertantly offend anyone, so please excuse anything in the post that might do that. I have so much admiration for all who are suffering from this disease, as well as the caregivers. The positivity you all seem to maintain in the face of adversity is really incredible.
So, what's my story? Well, I've always been a bit of a hypochondriac, so it was probably just a matter of time before I became afraid of ALS. My situation started this summer when I began experiencing widespread twitching, coincidentally after being prescribed an anti anxiety mediation called Lexapro. I immediately entered my symptoms into Google, and bam. Was I didn't know much about this disease, except that my friend's mother passed away from it five years ago. I now wish I could erase much of the knowledge I have gained on ALS - ignorance really is bliss.
So, I begged my GP for a neurology referral. Got it. Had the consultation late August, was given the all-clear (along with a strong recommendation to treat my anxiety). But, that didn't satisfy me. So, back to the GP, begged for an EMG referral (the neurologist wasn't even prepared to do one). They agreed. Had my very thorough EMG done. Totally clean. This was mid-September.
So, how am I back at square one? After the EMG, I was temporarily able to stop being scared about the twitching. But, in the last couple of weeks, I've began focusing my worries on a perceived issue with my upper left arm - sore? fatigued? No surprise, twitching has gone haywire, including the "buzzing" sensation I seem to get in the arches of both feet, and now the left hand.
From what I've been told my several doctors, people who are weak know they're weak, and they don't have to test themselves to find out. But am I confident? No way. Actually, I've scheduled another EMG for the Thursday after next.
Thoughts? Words of wisdom? Please, yell at me, tell me I'm an idiot and to smarten up, if that's what you think...tell me to get the heck off of this forum, anything, just let me know what you think
Been skulking around the forum for two months. As many others have stated, the last thing I want to do is to inadvertantly offend anyone, so please excuse anything in the post that might do that. I have so much admiration for all who are suffering from this disease, as well as the caregivers. The positivity you all seem to maintain in the face of adversity is really incredible.
So, what's my story? Well, I've always been a bit of a hypochondriac, so it was probably just a matter of time before I became afraid of ALS. My situation started this summer when I began experiencing widespread twitching, coincidentally after being prescribed an anti anxiety mediation called Lexapro. I immediately entered my symptoms into Google, and bam. Was I didn't know much about this disease, except that my friend's mother passed away from it five years ago. I now wish I could erase much of the knowledge I have gained on ALS - ignorance really is bliss.
So, I begged my GP for a neurology referral. Got it. Had the consultation late August, was given the all-clear (along with a strong recommendation to treat my anxiety). But, that didn't satisfy me. So, back to the GP, begged for an EMG referral (the neurologist wasn't even prepared to do one). They agreed. Had my very thorough EMG done. Totally clean. This was mid-September.
So, how am I back at square one? After the EMG, I was temporarily able to stop being scared about the twitching. But, in the last couple of weeks, I've began focusing my worries on a perceived issue with my upper left arm - sore? fatigued? No surprise, twitching has gone haywire, including the "buzzing" sensation I seem to get in the arches of both feet, and now the left hand.
From what I've been told my several doctors, people who are weak know they're weak, and they don't have to test themselves to find out. But am I confident? No way. Actually, I've scheduled another EMG for the Thursday after next.
Thoughts? Words of wisdom? Please, yell at me, tell me I'm an idiot and to smarten up, if that's what you think...tell me to get the heck off of this forum, anything, just let me know what you think