In my mind, I am thinking that he did not do a emg of my tongue and the bulbar is stuck there.
As most of us on this board realize -- and you should too -- ALS doesn't get "stuck" in one location of the body. By its diagnostic standards and the nature of its physiological progression, ALS is a disease of the
entire body. Although it usually manifests itself clinically in a single location, by the time those clinical symptoms can be observed and measured, ALS has been doing damage at the subclinical level for a substantial period of time and an experienced neurologist
will find additional symptoms of that damage in other parts of the body, either through EMG or the clinical neurological exam.
Making statements like "it's stuck in the bulbar" or "he didn't EMG my tongue" shows that you know very little about ALS, how ALS works and progresses, and how doctors diagnose ALS. Given that
appalling level of ignorance that you have about ALS -- and, yes, you are ignorant about ALS or you wouldn't be saying the same tired old things we've refuted here dozens, if not hundreds of times -- what makes you think that you see what what qualified doctors don't?
Out of the (literally) hundreds of medical conditions that could explain your symptoms, why have you decided that ALS is the best fit? Of course, the true explanation is that you are a gullible person with an unhealthy level of health anxiety who has too much time on her hands, a compulsion to read about rare diseases, and the propensity to believe that medical "information" on the Internet has to be true. Admitting that might get you on the right track to seek treatment for what really ails you.
I apologize to any on this board who I offend with my fears.
Fears aren't offensive. Sticking to irrational fears after you've been informed that what you are basing your fears upon simply isn't so is egocentric and selfish behavior. As is apologizing for such behavior and then repeating it. That's what is offensive. But we get over it.
I can't imagine what some of you are going through.
No, you can't. But you are trying
mightily to imagine it, which is why you are here. Why? Nobody knows but you. And because you are the one that started this erroneous fantasy and continue to feed it, you'll be the only one who can stop it. That makes you the one that's responsible for the fear and anxiety you feel -- and the one who can stop that fear and anxiety by changing what you think and basing your future thoughts and actions on accurate information and not lurid and morbid imaginings.
There are far healthier things to spend your imagination efforts on -- writing a poem or a story, painting a picture, composing a song. You should spend more time doing things like that and less time looking at medical stuff on the Internet.
Good luck to you.