miloedison
New member
- Joined
- Jul 30, 2011
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- fl
- City
- boca
I'm really scared that I have ALS. So much so it is consuming my life and my family. About two months ago just before going in for gallbladder surgery, I noticed twitching in both of my calves.
I met with my neuro shortly after and he performed the standard strength tests. I continued to have the twitching in my calves, so about one month later he performed an EMG/NCV and he said it was clean.
Fast forward another month and my twitching in my calves continue and it has slowly moved to other parts of my legs. It has just started in my left arm as well. For about two weeks I have also experienced cramps in both feet and a little bit in my hands.
I have a couple of questions. I feel since my neuro is not an ALS specialist he might have missed something on my EMG test, is that possible? Also, the twitching is not random, it continues in the same area as when I first noticed it but has spread slowly, does this seem like an ALS sign? The cramps do not go away no matter what I do, this seems less like BCFS and more like an early ALS sign, correct? Finally, my arm and leg size seems to be considerably smaller. I have been measuring them for about two months and my calves and biceps are definitely smaller by about an inch on my calves and biceps. Does that seem like muscle atrophy?
I’m trying to get to an ALS specialist at UM in Miami but still waiting.
Thank you for any advise.
I met with my neuro shortly after and he performed the standard strength tests. I continued to have the twitching in my calves, so about one month later he performed an EMG/NCV and he said it was clean.
Fast forward another month and my twitching in my calves continue and it has slowly moved to other parts of my legs. It has just started in my left arm as well. For about two weeks I have also experienced cramps in both feet and a little bit in my hands.
I have a couple of questions. I feel since my neuro is not an ALS specialist he might have missed something on my EMG test, is that possible? Also, the twitching is not random, it continues in the same area as when I first noticed it but has spread slowly, does this seem like an ALS sign? The cramps do not go away no matter what I do, this seems less like BCFS and more like an early ALS sign, correct? Finally, my arm and leg size seems to be considerably smaller. I have been measuring them for about two months and my calves and biceps are definitely smaller by about an inch on my calves and biceps. Does that seem like muscle atrophy?
I’m trying to get to an ALS specialist at UM in Miami but still waiting.
Thank you for any advise.