gingersnaps
New member
- Joined
- Jul 30, 2011
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- ME
- City
- Saco
I am new to this forum and looking for information. I am in "no diagnosis limbo". Symptoms that brought me to a neurologist were pins & needles in hands and feet off & on, muscle cramps after biking last summer, and fasciculations where pinky and thumb would twitch and move ,also twitch along arch that would move my big toe. This continues to happen off and on and is noticable at rest on left leg. In January had what was like an attack where my muscles were extremely tight, lower back pain and an episode of painful muscle squeezing in the sternum which lasted 3-4 mins. I continued to work but very spaced out. After that I saw the Dr. and was referred to neuro. Saw neurologist and had MRI of cervical spine and head both normal. Blood work, normal. Neuro exam showed no issues with strength but did show 1+ reflexes in ankles and loss of vibration sense in lower legs. Had EMG which showed chronic, right-sided ulnar nerve denervation. The changes in nerves chronic and likely due to compressive peripheral injury because there is no other explanation. Rest of EMG and and nerve conduction were normal. No evidence of radiculopathy, polyneuropathy or muscle disease. The neuro said I don't have ALS but benign myokymia. She said come back for a followup if new symptoms develop. I can still bike but do about 10miles. I don't feel my muscles are super strong. Any insights would be appreciated. Thanks a lot!