Old 07-29-2011, 08:29 AM #1 (permalink)
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Default Collapsed soft palate

So I'm in the coffee shop the other day and suddenly my soft palate just sags down to the back of my tongue. Bam just like that. I didn't know what it was until I go and look in the mirror. It was like there was no back of my mouth, no hangy down uvula, no tonsils nothing. just a pink wall. When I say ahhh it rises a bit so I can see the uvula at least. Has anyone here experienced anything similar?
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Old 07-29-2011, 08:36 AM #2 (permalink)
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Default Re: Collapsed soft palate

That was my next symptom after slurred speech. I sound very nasal and stuffy now when I speak. Its better in the AM but gets worse as the day wears on.
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Old 07-29-2011, 08:49 AM #3 (permalink)
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Default Re: Collapsed soft palate

Thanks, Susan. I appreciate your response. My speech is still fine but i've had weird mucus swallowing issues for about a year. Also when it started my soft palate felt "numb" on and off.
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Old 07-29-2011, 09:12 AM #4 (permalink)
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Default Re: Collapsed soft palate

@Susan
Quick follow up question. How long did it take for you to be diagnosed. I'm going on 2 years of clean emgs. That said, I've done my research--can't find much else that causes a collapsed soft palate in such a short timeframe.
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Old 07-29-2011, 12:33 PM #5 (permalink)
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Default Re: Collapsed soft palate

You did, of course, make an appointment with your primary care physician or an ear, nose, and throat specialist to verify that what you think happened actually did happen, didn't you? Seems to me that that's an awfully drastic diagnosis to make on your own.
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Old 07-29-2011, 12:44 PM #6 (permalink)
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Default Re: Collapsed soft palate

Hey Trfogey
Fair question and thanks for asking. Going in in an hour and a half to see gp.
It's a pretty dramatic change in the way the back of my mouth looks and feels. It took me a second to realize I was just looking at a pink wall.
Cheers,
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Old 07-29-2011, 02:29 PM #7 (permalink)
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Default Re: Collapsed soft palate

Never had that problem,
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Old 07-29-2011, 03:40 PM #8 (permalink)
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Default Re: Collapsed soft palate

I have had slurred speech for 2 years. I have not experienced any problem with soft palate.
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Old 07-29-2011, 06:54 PM #9 (permalink)
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Default Re: Collapsed soft palate

God Bless you.
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Old 07-29-2011, 07:29 PM #10 (permalink)
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Default Re: Collapsed soft palate

Two years of clean EMG's? And you still do not believe you do not have ALS..
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Old 07-29-2011, 11:30 PM #11 (permalink)
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Default Re: Collapsed soft palate

I started sounding nasal in December when I was tired.it was on and off until May. Second opinion in June. Like I said before, if I had clean emg's I would kiss the neuro and buy the office lunch. However, as a former speech Path , something Is going on with your palate.
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Old 07-30-2011, 10:41 AM #12 (permalink)
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Default Re: Collapsed soft palate

Well the doc said that my palate looks normal and functioned normally and symmetrically. He said my voice sounded hoarse, but that my throat was red and cobblestoned. I had a long talk with him about my anxiety over my symptoms. I've been so stressed out that I lost 10 pounds in two weeks. Anyway, he sat me down and gave me a good trfogey-style run through--multiple clean emgs, two years of no changes in functionality--it just doesnt add up. We worked out a plan to help me cope with my anxiety until my follow up with the neuro. He thinks my fasiculations and brisk reflexes are umn residual from multiple concussions, and so far there's been no indication of LMN involvement on the emg. I just feel like such a jackass for letting it make me so disfunctional--especially in light of what the good folks on this forum have to deal with daily. I'm going to stay away from the forum while this gets sorted, but thank you all so much for your thoughtful input and caring responses. They have meant a lot to me over the last two years.
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Old 07-30-2011, 12:16 PM #13 (permalink)
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Default Re: Collapsed soft palate

Thank you for your great reply, and congratulations on having s good GP who has sat down and helped with your anxiety. Multiple and even 1 concussion cam cause lifetime UMN signs on examination, even with no symptoms at all.

I hope you can get out there and enjoy your wonderful life, without so much stress.
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Old 07-30-2011, 05:39 PM #14 (permalink)
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Default Re: Collapsed soft palate

Good luck TM! Live a great life!
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