iloveJESUS
Active member
- Joined
- Jun 20, 2011
- Messages
- 31
- Reason
- Learn about ALS
- Country
- US
- State
- ky
- City
- lexington
I have been pondering through this site for about a month now, just to get some ideas and what not after haveing all of my mris and lp come back negative for MS a month ago
my neuro (which iam in a current situation getting new one) said all was ok(as MS GOES) i looked over everthing was normal, but symtoms are still definetly there ,but NO ALS diagnosis
I will list my symtoms and if any are familiar and would mine sharing your opinions or any ideas/suggestions they are apprectiated greatly as iam getting quite worried and dont know when my next appointent even is,
1) BACK in November twitching startd maninly legs sometimes arms, and now face, they happen every day but dont bother me as they can be nothing ,they dont worry me ,but seem to fit in my picture as a puzzle pieace
2)Jan lower back spams starts (figured oh i hurt it sometime yata yata) went to Dr got flxoral didnt help ,but went away days and came on some days, (no biggie just painful)
3) Weakness came on put me in the bed yes, i could still stand (unassistated) but went to the ER bc i never felt that way in my ENTIRE LIFE (few days before mouth startd quivering when smiling and still does this) it seemd to have gotton better but then came right back.. I do relieze people here describe this weakness in differnt ways like some its a noodly feeling, or a i cant do it any more feeling, or a feeling of not moving fast anymore, i cant still do but not like i used to.
4)when i hold say my steering weel, or go swimming and you know how when your little you go and hold youslef in the water up because you feel weightless and do pull ups or hold yourslef with one leg.. well when i do this now i shake very badly i can not even squat and hold it without shaking, or go bathroom and stand up without falling over or shaking comeing back up
5) Balance. it has gotten worst past month i trip on a lot or fall over all the time.
6) Stiffness. espically in my feet that NEVER goes away on rest or stretch or walking just its like when i walk iam walking on a big ball of glued stiffness this is a new thing i used to get stiff sometimes ,but not constant when i havent been doing much i bend my feet or strech nothing helps , my hands have been starting lately to feel somewhat like my feet.
7)Muslce Atrphy. I will be honest what I SEE could be in my calf.. now i cant say if i do or i dont because thats something i would not be able to honestly honestly tell or measure. so i cant say yay or nay on this....
***these symtoms have been since all in a 5month time frame.. iam still ABLE and walk just not anything like before I haVE recently been getting a sore throat which the DR cant find as why i would?.. and i get charlie horses also... BUT not charile horses everyday, and a stiff neck could be anything as the throat, its gets worst then gets little better then comes right back, and congestion but not much (congestion eneough for a horase voice not to yell and lots of snot bugers haha)Also i have gotton over just a virus they "seem to think" in my tum tum and Iam so weak now its hard to stand for long periods of time ,but this could also soley be from me being weak from before?
well iam not sure if i have done a well eneogh job explaining myself or this was to long i was trying to explain how i would to a doctor
THANK YOU
my neuro (which iam in a current situation getting new one) said all was ok(as MS GOES) i looked over everthing was normal, but symtoms are still definetly there ,but NO ALS diagnosis
I will list my symtoms and if any are familiar and would mine sharing your opinions or any ideas/suggestions they are apprectiated greatly as iam getting quite worried and dont know when my next appointent even is,
1) BACK in November twitching startd maninly legs sometimes arms, and now face, they happen every day but dont bother me as they can be nothing ,they dont worry me ,but seem to fit in my picture as a puzzle pieace
2)Jan lower back spams starts (figured oh i hurt it sometime yata yata) went to Dr got flxoral didnt help ,but went away days and came on some days, (no biggie just painful)
3) Weakness came on put me in the bed yes, i could still stand (unassistated) but went to the ER bc i never felt that way in my ENTIRE LIFE (few days before mouth startd quivering when smiling and still does this) it seemd to have gotton better but then came right back.. I do relieze people here describe this weakness in differnt ways like some its a noodly feeling, or a i cant do it any more feeling, or a feeling of not moving fast anymore, i cant still do but not like i used to.
4)when i hold say my steering weel, or go swimming and you know how when your little you go and hold youslef in the water up because you feel weightless and do pull ups or hold yourslef with one leg.. well when i do this now i shake very badly i can not even squat and hold it without shaking, or go bathroom and stand up without falling over or shaking comeing back up
5) Balance. it has gotten worst past month i trip on a lot or fall over all the time.
6) Stiffness. espically in my feet that NEVER goes away on rest or stretch or walking just its like when i walk iam walking on a big ball of glued stiffness this is a new thing i used to get stiff sometimes ,but not constant when i havent been doing much i bend my feet or strech nothing helps , my hands have been starting lately to feel somewhat like my feet.
7)Muslce Atrphy. I will be honest what I SEE could be in my calf.. now i cant say if i do or i dont because thats something i would not be able to honestly honestly tell or measure. so i cant say yay or nay on this....
***these symtoms have been since all in a 5month time frame.. iam still ABLE and walk just not anything like before I haVE recently been getting a sore throat which the DR cant find as why i would?.. and i get charlie horses also... BUT not charile horses everyday, and a stiff neck could be anything as the throat, its gets worst then gets little better then comes right back, and congestion but not much (congestion eneough for a horase voice not to yell and lots of snot bugers haha)Also i have gotton over just a virus they "seem to think" in my tum tum and Iam so weak now its hard to stand for long periods of time ,but this could also soley be from me being weak from before?
well iam not sure if i have done a well eneogh job explaining myself or this was to long i was trying to explain how i would to a doctor
THANK YOU
