Emz1985
Member
- Joined
- May 30, 2011
- Messages
- 15
- Reason
- Learn about ALS
- Country
- AUS
- State
- Vic
- City
- Melbourne
Hi everyone,
I'm new to this site so hope I've posted in the right section,
My question is does anyone else get frustrated and sick of waiting for a diagnoses?
I'm in the process of being diagnosed with a few possiabiltys of motor neuron disease, spinal mucular atrophy, spastic paraplegia and musuclar disrophy... mnd is the one my neurologist is most concerned I have.
It's not so much off not knowing what I'll be diagnosed with as I have come to terms that either way it won't be able to reverse my current state I can't stand, squat, bend over, barely walk or lift anything that ways more than a a couple if dinner plates. But the most frustrating thing I'm finding is the waiting, 9months ago my life was perfect not a care in the world at 26 i was living it up, but now it like I'm stuck in this limbo of waiting as I watch my friends travel and start family's I'm off to docs appointments and filling out paperwork for a disability pention, sorry for the rant bur I'd just like to no how does everyone cope? I can mo longer work which was my passion as I was a chef and lived and breathed cooking I don't have any real hobbies other than that can anyone suggest anything to make time go faster? Lol
I'm new to this site so hope I've posted in the right section,
My question is does anyone else get frustrated and sick of waiting for a diagnoses?
I'm in the process of being diagnosed with a few possiabiltys of motor neuron disease, spinal mucular atrophy, spastic paraplegia and musuclar disrophy... mnd is the one my neurologist is most concerned I have.
It's not so much off not knowing what I'll be diagnosed with as I have come to terms that either way it won't be able to reverse my current state I can't stand, squat, bend over, barely walk or lift anything that ways more than a a couple if dinner plates. But the most frustrating thing I'm finding is the waiting, 9months ago my life was perfect not a care in the world at 26 i was living it up, but now it like I'm stuck in this limbo of waiting as I watch my friends travel and start family's I'm off to docs appointments and filling out paperwork for a disability pention, sorry for the rant bur I'd just like to no how does everyone cope? I can mo longer work which was my passion as I was a chef and lived and breathed cooking I don't have any real hobbies other than that can anyone suggest anything to make time go faster? Lol