Have you gone to that neuro appt you had scheduled a while back? Are you still determined not to have an EMG/NCV? They absolutely can not diagnose you without those tests--and many others--whether it's ALS or something else.
I can understand denial--I lived there for nearly a year before I finally realized I was losing more and more abilities before I became adamant that I find a doctor to find out what was wrong with me.
Your Lyme lab has been investigated by the FDA for some of their practices. Find a reputable doctor to diagnose you. You're obviously good at research--do some research on the lab.
Unlike some here--I don't tend to be mean to anyone that comes here looking for answers when they're scared--because I've been there--and like most on this part of the board, am in diagnostic limbo--but you're ignoring the advice from everyone. That's okay--you know we're not doctors. But--hon, seriously, if you want answers, they aren't going to come from the internet. They are going to come from a specialist.
Don't assume your Lyme doctor and lab are correct--like anything else--get a SECOND OPINION before undergoing ANY treatment. If, heaven forbid, you end up having ALS--you could harm yourself with being treated for something you may not have. I'd scheduled myself into a spinal surgeon to fix my neck and another to fix my hand--until the ALS specialist told me I absolutely should NOT have any surgery until she finds out what is wrong with me. My point is--you might be doing yourself more harm than good by going through treatments that may at best not be necessary, and at worse--detrimental to your health.
I'd freak out too if one get seemed to be getting smaller--but remember, most people do have a variance in their limbs. Some even have two different feet sizes.
Please just go to a neuro--the chances are VERY good that they will find out that you do not have ALS. Try to enjoy your life. Fear itself can be very disabling. It really can.