deniseannette
Member
- Joined
- May 8, 2011
- Messages
- 27
- Reason
- Learn about ALS
- Country
- CA
- State
- ontario
- City
- toronto
Thank you so much for taking the time to read my post. I am new to this forum. For about a month or two I noticed that my toes (on both feet) would have a tingling, twitchy kind of sensation. Kind of like a very light electrical charge. I chose to ignore it. I will admit that I can be kinda cheap. i had holes in my shoe, so I assumed that that was why my feet had that feeling. Maybe it was too cold or i don't know. Then I came down with a very nasty virus. I could barely keep food down, could'd get a grip of things and a metre felt like a mile. Doctors told me they couldn't do anything. That I had to wait it out. I still feel ill to this day. Its been about 6 weeks.
As of right now, I've been expriencing:
Muscle twitching: calfs, thighs, arms, fingers, shoulders,shoulderblades and buttocks
Muscle weakness: Left arms (but i barely use my left arm, I'm right handed. I keep telling myself that at least). its not significant.
Pain: spinal cord, back, shoulder blades, joints.
Gag reflux are out of control. I can barely brush my teeth.
When I sleep, i feel like my throat is closing in on me. i feel breathless at times.
I never wake up fully rested.
I wake up shaking, shiver (like internal tremors) more often than not
Stiffness in both hands (mainly left hand)
Facial twitching (nose, upper lip, eyes)
Tingling sensation around face: mainly left side.
It feels like the left side of my face is a little slimmer than the right side. My cheeks are smaller in size on left side.
My left arms is about 1.5-2 inches smaller than my right arm (yes, i measured)
Light electrical charge sensation (left foot, leg and thigh)
Cracking and poping of every joint.
Vertigo (not too extreme)
Ive woken up a few times gagging. I thought I had the stomach flu (hoping it was the stomach flu) but my blood tests came out fine. It feels like I've had 100 blood tests and all of them have come back normal. My family doctor told me to take vitamin D for muscle twitching. that did not help.All I can think of is ALS
I'm so sorry to badger you all. I'm just at my wits end and so scared. I feel like Ive been in hell for the past 2 months. Everyday I wake up hoping I can be my happy-go lucky self but i can't. Ive lost all my energy. I've been pretty much a hermit. Its very hard to see muscle atrophy because I am overweight. Before i became ill I was about 237 and now im about 218, probably less ( I guess that's the only good thing about this ordeal!)
I dont have much family or friends. All I have is my dad, who is 69 years old and my sister who is developmentally handicapped. I wouldn't want to put added pressure on my father. He is still out in the workforce and has a lot of things to deal with. I'm 21 years old and to be honest i haven't done much with my life. I'm so terrified that this will take my life.
What do you all think? Is this something I should worry about? Maybe it is anxiety?
I'm having a CT scan done of my spine and brain on May 18th. I have a appointment with a neurologist on June 25.
Please pray for me.
As of right now, I've been expriencing:
Muscle twitching: calfs, thighs, arms, fingers, shoulders,shoulderblades and buttocks
Muscle weakness: Left arms (but i barely use my left arm, I'm right handed. I keep telling myself that at least). its not significant.
Pain: spinal cord, back, shoulder blades, joints.
Gag reflux are out of control. I can barely brush my teeth.
When I sleep, i feel like my throat is closing in on me. i feel breathless at times.
I never wake up fully rested.
I wake up shaking, shiver (like internal tremors) more often than not
Stiffness in both hands (mainly left hand)
Facial twitching (nose, upper lip, eyes)
Tingling sensation around face: mainly left side.
It feels like the left side of my face is a little slimmer than the right side. My cheeks are smaller in size on left side.
My left arms is about 1.5-2 inches smaller than my right arm (yes, i measured)
Light electrical charge sensation (left foot, leg and thigh)
Cracking and poping of every joint.
Vertigo (not too extreme)
Ive woken up a few times gagging. I thought I had the stomach flu (hoping it was the stomach flu) but my blood tests came out fine. It feels like I've had 100 blood tests and all of them have come back normal. My family doctor told me to take vitamin D for muscle twitching. that did not help.All I can think of is ALS
I'm so sorry to badger you all. I'm just at my wits end and so scared. I feel like Ive been in hell for the past 2 months. Everyday I wake up hoping I can be my happy-go lucky self but i can't. Ive lost all my energy. I've been pretty much a hermit. Its very hard to see muscle atrophy because I am overweight. Before i became ill I was about 237 and now im about 218, probably less ( I guess that's the only good thing about this ordeal!)
I dont have much family or friends. All I have is my dad, who is 69 years old and my sister who is developmentally handicapped. I wouldn't want to put added pressure on my father. He is still out in the workforce and has a lot of things to deal with. I'm 21 years old and to be honest i haven't done much with my life. I'm so terrified that this will take my life.
What do you all think? Is this something I should worry about? Maybe it is anxiety?
I'm having a CT scan done of my spine and brain on May 18th. I have a appointment with a neurologist on June 25.
Please pray for me.