Hello, I thought I would like to give you all an update and once again thank all of you who have put up with me for close to 4 years.
In July of 2007 I noticed a twitch in my tongue. I googled it and it came back ALS. Those thre little letters changed my life. My GP a personal friend said he didn't think it was he sent me a great Neuro in Sept 2007 ( we have become friends since) who did an emg and it came back normal. Couldn't tell me what was causing the twitch but said it wasn't ALS. Went for a second opinion. This neuro kept us waiting for over 4 hours and we were the second appointment that morning. I was so nervous that I failed the emg. His report to my GP stated due to the fact that the patients was unable to achieve complete muscle relaxation this report is in doubt. Then he said that he believed that I had ALS. My GP contacted the first Nero who had tested the same areas less than a month before and found nothing wrong. They told me the second guy report was not worth the paper it was printed on. I didn't believe them and with in one week my doctor thought I was going to have a stroke and a breakdown. I was put in the hospital for four days and treated.
The years that followed were not good. I continued to think that I had ALS even though I continued to pass each exam from my GP. He had me in every month and the Nuero saw me every three months. I Was put on medication to calm me down. I gain 60lbs. Went off the medication and my tongue would twitch in a new location and I would be back on it. They sent me different specialist and they all said no ALS,
I was always here a person by the name of Wright was great to me. So were many here who are suffering from this disease that were kind to me as well.
When I asked the Nuero when I should come back he would say when your wife tell you. I would say that I will see you in 8 months.
I just saw him this week and told him of the various twitches and etc. He would look at everything and told me the same thing. We may never know what is causing your twitches but I can tell you what you don't have. He tells me that I don't need to see him but it will be OK to see him in 8 months.
I have wasted close to four years of my life on this. It has consumed me. Every twitch or tremor still strikes fear in me. Not as much as four years ago but still more than a little bit.
If I live to be 80 I don't know if I can ever be free of this worry. The thought of this disease strikes fear in to people like almost nothing else can.
Again thank you all for the way you treated the big baby. Especially the people who have this disease who still can come to this site and try to help people like me. God Bless.
In July of 2007 I noticed a twitch in my tongue. I googled it and it came back ALS. Those thre little letters changed my life. My GP a personal friend said he didn't think it was he sent me a great Neuro in Sept 2007 ( we have become friends since) who did an emg and it came back normal. Couldn't tell me what was causing the twitch but said it wasn't ALS. Went for a second opinion. This neuro kept us waiting for over 4 hours and we were the second appointment that morning. I was so nervous that I failed the emg. His report to my GP stated due to the fact that the patients was unable to achieve complete muscle relaxation this report is in doubt. Then he said that he believed that I had ALS. My GP contacted the first Nero who had tested the same areas less than a month before and found nothing wrong. They told me the second guy report was not worth the paper it was printed on. I didn't believe them and with in one week my doctor thought I was going to have a stroke and a breakdown. I was put in the hospital for four days and treated.
The years that followed were not good. I continued to think that I had ALS even though I continued to pass each exam from my GP. He had me in every month and the Nuero saw me every three months. I Was put on medication to calm me down. I gain 60lbs. Went off the medication and my tongue would twitch in a new location and I would be back on it. They sent me different specialist and they all said no ALS,
I was always here a person by the name of Wright was great to me. So were many here who are suffering from this disease that were kind to me as well.
When I asked the Nuero when I should come back he would say when your wife tell you. I would say that I will see you in 8 months.
I just saw him this week and told him of the various twitches and etc. He would look at everything and told me the same thing. We may never know what is causing your twitches but I can tell you what you don't have. He tells me that I don't need to see him but it will be OK to see him in 8 months.
I have wasted close to four years of my life on this. It has consumed me. Every twitch or tremor still strikes fear in me. Not as much as four years ago but still more than a little bit.
If I live to be 80 I don't know if I can ever be free of this worry. The thought of this disease strikes fear in to people like almost nothing else can.
Again thank you all for the way you treated the big baby. Especially the people who have this disease who still can come to this site and try to help people like me. God Bless.
