Old 04-25-2011, 10:14 PM #1 (permalink)
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Default About Brentonjb

It seems almost unreal that almost three weeks ago "ALS" was not even in my vocabulary. Not I am, admittedly, frantic and desperate for answers. Yes, I know we should be asking the doctor. However, I feel like the time until the next appointment is almost too much to bare. I feel like I am losing my mind.

Unfortunately his appointment isn't until next week but the anxiety is killing me. I am hoping if there's any one that can please comment on his emg reading. I know the best information will come from the doctor but I guess what I am grasping at is for some one to say that it's not ALS and it's not likely to be ALS. This was his EMG result:

Conclusion
This is an abnormal studay. There is electrodiagnostic evidence of EMG only for a mild neurogenic process. There were fasiculations in both gastroc and T-8 paraspinal muscles, which is concerning but not completely diagnostic for motor neuron disease. There was no evidence for mononeuropathies, polyneuropathy, nor myopathy.

However, the doctor said he just DOESNT KNOW, at the time of the emg, what this could be and he might need to have another emg done. Should I go into panic mode? Does this mean there is room for ALS?

He also noted that he had increased muscle toning and a bit of hyper reflexes. The only other thing to report is that he does have the fasics. He also has Degenerative Disc Disease and if you were following his story earlier, he first had an MRI with mild brain atrophy and 3 lesions. However, after a spinal tap, the doctor has said he thinks it's very unlikely that this is MS.

I hesitate even posting here because I know every one of you is going through the same thing but any advice, any comfort is welcome.

"Wright" especially if you have any information, I seem to notice that you know and comment on a lot of EMG results. Thank you all and God bless you all, gosh you all have no idea the admiration in my heart for you.

I am trying to relax in my faith of Jesus and I have been praying for not only him but all of you as well and it is just getting to the point where I don't know if I can go any further.
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Old 04-25-2011, 10:46 PM #2 (permalink)
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Default Re: About Brentonjb

Abnormal brain MRI= NOT ALS.
CIDP? Perhaps. MS? even more likely.
NOT ALS.
Sorry to burst your bubble.
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Old 04-25-2011, 10:47 PM #3 (permalink)
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Default Re: About Brentonjb

You also have to rule out a slew of autoimmune conditions, there are far too many ALS "mimics" out there in that area alone.
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Old 04-25-2011, 10:54 PM #4 (permalink)
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Default Re: About Brentonjb

He's seeing the ALS clinic again in a week or so. He can take his results with him there--and Dr. Vu will decide if he thinks it needs repeated--or if he needs referred to another specialist.

He has the name of an MS Specialist. No one here can give you a 100% guarantee that he does not have ALS.

Odds are pretty high with his other things, that he has something else going on, like MS. There's lots of possibilities.
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Old 04-25-2011, 11:03 PM #5 (permalink)
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Default Re: About Brentonjb

like Alastor M stated there is so much to rule out befor als is the final DX get out of your head and wait untill u see doc. no matter what if it is mnd there's nothing that you nor anyone can do so live your life.
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Old 04-26-2011, 08:44 AM #6 (permalink)
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Default Re: About Brentonjb

Hi
I am afraid I cannot comment on the EMG results at all but I just wanted to let you know that I understand what you are going through. My husband currently has a list of symptoms and no diagnosis and I am confused and terrifed. I understand totally how draining the waiting game is. It might not work for you but in the week leading up to my husband's last appointment both of us were so anxious and were getting so worked up we agreed that neither of us would mention the word ALS, we would not go onto the internet or any forums and I promised him I would stop asking if he was ok all the time! I know it is easier said than done but it did us the world of good and made waiting for the next appointment a bit more bearable.
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Old 04-26-2011, 03:23 PM #7 (permalink)
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Default Re: About Brentonjb

It obviously appears that there is something going and it also appears at this point that the Dr's are not sure what is wrong. The last thing that he should be doing is jump to the conclusion that it is ALS. I know this is easier said then done but think of it this way, whatever is happening you can not control it so do not try to and let go of your fears and anxiety. You will learn the less you try and control in your life, the more control of your life you have!

Stay strong and keep the faith!
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