notme
Extremely helpful member
- Joined
- Apr 3, 2011
- Messages
- 2,605
- Reason
- PALS
- Diagnosis
- 08/2011
- Country
- US
- State
- Fl
- City
- Orlando
Hello
As some of you might now, my neurosurgeon feels it's very possible that I have ALS based on his clinical exam and my very marked atrophy in several areas of my hands/arms and leg weakness.
Here is the problem. The neuro feels sure that this atrophy and all is not being caused by my neck after reading my MRI films.
At the request of my daughter, who doesn't want to even talk about the possibility of a MND, I sent my reports to the spine institute for a 2nd opinion. THEY think they can fix my neck.
The ALSA told me specifically to not have any unnecessary surgical procedures because if I do have ALS, apparently, surgery can aggravate it.
So, here is my problem. Do I let them fix my neck or do I wait to see what the ALS clinic has to say next month?
I'm just floored--another person living here that posts is going tomorrow for 2nd or 3rd EMG and I can't even get ONE done that my neurosurgeon ordered. Something is wrong with this system!
Thanks for input
As some of you might now, my neurosurgeon feels it's very possible that I have ALS based on his clinical exam and my very marked atrophy in several areas of my hands/arms and leg weakness.
Here is the problem. The neuro feels sure that this atrophy and all is not being caused by my neck after reading my MRI films.
At the request of my daughter, who doesn't want to even talk about the possibility of a MND, I sent my reports to the spine institute for a 2nd opinion. THEY think they can fix my neck.
The ALSA told me specifically to not have any unnecessary surgical procedures because if I do have ALS, apparently, surgery can aggravate it.
So, here is my problem. Do I let them fix my neck or do I wait to see what the ALS clinic has to say next month?
I'm just floored--another person living here that posts is going tomorrow for 2nd or 3rd EMG and I can't even get ONE done that my neurosurgeon ordered. Something is wrong with this system!
Thanks for input