Miss. Twitchy
New member
- Joined
- Apr 14, 2011
- Messages
- 7
- Reason
- Learn about ALS
- Country
- US
- State
- MO
- City
- kansas city
Hi everyone
well, i have been reading these forums for quite some time and never thought i would actually post. (AL you are my idol :wink anyways, i have been twitching for around 18 months... started in october 2009. i was 22 when all this crap started, just got married that september, everything was pretty awesome and then BAM my eye started twitching. the weird thing was that you couldnt see it twitching, it felt like it was my actual eyeball! i did notice other little twitches here and there too but didnt really fret on it or anything. just kept on livin life normal.
twitching, twitching, twitching. i decided to go to my normal doctor lady, and she was like huh? took my blood and sent me to a nuerologist and i was SCARED TO DEATH. i went and the guy was so hard to understand LOL he didnt really tell me what he thought was wrong and im just some crazy young chick LOL but really though! i had 2 mri's and they were both normal. my insurance ran out before i had the emg- long story.btw, blood normal. no thyroid issues, nothing.
also, i have alot of other symptoms. well first there is the twitching, which is everywhere, and i mean everywhere. legs, back, stomach, face, but mostly my left arm and wrist and also my fingers. i have twitches in my left forearm that will move my fingers! i hate those the most.... my left wrist is also smaller and looks more wrinkly than the other one...
other strange symptoms are these annoying eye floaters, and my pupils are unequal. i have been to the eye doc and he said that everything looks normal and that i am supposed to pay a buttload of cash to have cocaine dropped into my eyes and looked at? LOL my knees! they hurt SO BAD when i stand up and they are like this on and off but they are horrible lately and have been hurting for months. i dont feel normal anymore. i am always hot, its annoying. i feel like im wasting away to nothing. i am only 24 for god sakes and i feel like im 80 years old. my whole body is always achy, im always tired..... back flank pain that has been there for the last 4 years (since i got ran over lol)
i know that noone can tell me what i am facing here but it would be nice for someone to tell me that i am too young to have als, but unfortunatly i know there are some people my ago with als. i really dont have too much weakness, besides in the knees when i stand up and also my left arm is kinda bad but i still hold cups and turn keys and what not. i live life normally but these damn twitches.... would i be totally weak with als by now? and how likely am i to have it at the age of 22-24?
and omg i just realized how long this is. sorry guys! i really havent gotten to voice my concerns with anyone..... thanks for reading this.
-amanda-
well, i have been reading these forums for quite some time and never thought i would actually post. (AL you are my idol :wink anyways, i have been twitching for around 18 months... started in october 2009. i was 22 when all this crap started, just got married that september, everything was pretty awesome and then BAM my eye started twitching. the weird thing was that you couldnt see it twitching, it felt like it was my actual eyeball! i did notice other little twitches here and there too but didnt really fret on it or anything. just kept on livin life normal.
twitching, twitching, twitching. i decided to go to my normal doctor lady, and she was like huh? took my blood and sent me to a nuerologist and i was SCARED TO DEATH. i went and the guy was so hard to understand LOL he didnt really tell me what he thought was wrong and im just some crazy young chick LOL but really though! i had 2 mri's and they were both normal. my insurance ran out before i had the emg- long story.btw, blood normal. no thyroid issues, nothing.
also, i have alot of other symptoms. well first there is the twitching, which is everywhere, and i mean everywhere. legs, back, stomach, face, but mostly my left arm and wrist and also my fingers. i have twitches in my left forearm that will move my fingers! i hate those the most.... my left wrist is also smaller and looks more wrinkly than the other one...
other strange symptoms are these annoying eye floaters, and my pupils are unequal. i have been to the eye doc and he said that everything looks normal and that i am supposed to pay a buttload of cash to have cocaine dropped into my eyes and looked at? LOL my knees! they hurt SO BAD when i stand up and they are like this on and off but they are horrible lately and have been hurting for months. i dont feel normal anymore. i am always hot, its annoying. i feel like im wasting away to nothing. i am only 24 for god sakes and i feel like im 80 years old. my whole body is always achy, im always tired..... back flank pain that has been there for the last 4 years (since i got ran over lol)
i know that noone can tell me what i am facing here but it would be nice for someone to tell me that i am too young to have als, but unfortunatly i know there are some people my ago with als. i really dont have too much weakness, besides in the knees when i stand up and also my left arm is kinda bad but i still hold cups and turn keys and what not. i live life normally but these damn twitches.... would i be totally weak with als by now? and how likely am i to have it at the age of 22-24?
and omg i just realized how long this is. sorry guys! i really havent gotten to voice my concerns with anyone..... thanks for reading this.
-amanda-