brentonjb
Active member
- Joined
- Jan 20, 2011
- Messages
- 49
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
- City
- Orlando
Greetings everyone. First I wanted to take a second and thank everyone who contributes here for their support. Not just towards myself (which has been a huge blessing), but the countless others who post daily - asking for help. There's a wealth of knowledge here, and I think it's really special that there are people, most of whom are suffering here, can take time out of their day try and aide others.
That being said, here's an update on my situation. I've just recently returned from an appointment with a head Neuro at a nearby University. I was referred to him by my local Neuro, mainly to get a second opinion on possible Nueromusclar Disease.
At present, I have an abnormal brain MRI (mild atrophy, few non-specific white matter changes), as well as brisk reflexes and spasticity in both legs. Only my legs (arms are fine). There's fasiculations as well, but everyone twitches, and mine weren't even recorded on my EMG. Otherwise no atrophy or weakness, but quite a bit of fatigue and soreness in both legs.
During the appointment we talked mostly about MS, and how due to my MRI, there's a possibility I may be in the early stages. However, I can not receive a clinical diagnosis (at this point), based on the fact that patients need to have at least seven white matter changes present in the film - while I only have three maybe four currently. As well as a clean neck / spine MRI.
At which point we talked about MND. He said the toning in my legs, along with the reflexes were concerning, but due to my age (24), and not having any weakness / atrophy - the chances of having MND are very, -very- low. He explained that while there has been cases of young people developing it, it's incredibly rare. At any rate he wants to continue to monitor my situation. Both on an MS and MND front. Which I definitely appreciate.
So at this point, while I was extremely happy to receive positive news, I suppose I'm just frustrated with the results. Both doctors are taking a "wait and see" approach in my particular case, which I understand given the circumstance / results, but I wish I knew what was really going on.
I should have be receiving some Lumbar Puncture results back in a few weeks, hopefully I'll have some more answers by then. Take care.
That being said, here's an update on my situation. I've just recently returned from an appointment with a head Neuro at a nearby University. I was referred to him by my local Neuro, mainly to get a second opinion on possible Nueromusclar Disease.
At present, I have an abnormal brain MRI (mild atrophy, few non-specific white matter changes), as well as brisk reflexes and spasticity in both legs. Only my legs (arms are fine). There's fasiculations as well, but everyone twitches, and mine weren't even recorded on my EMG. Otherwise no atrophy or weakness, but quite a bit of fatigue and soreness in both legs.
During the appointment we talked mostly about MS, and how due to my MRI, there's a possibility I may be in the early stages. However, I can not receive a clinical diagnosis (at this point), based on the fact that patients need to have at least seven white matter changes present in the film - while I only have three maybe four currently. As well as a clean neck / spine MRI.
At which point we talked about MND. He said the toning in my legs, along with the reflexes were concerning, but due to my age (24), and not having any weakness / atrophy - the chances of having MND are very, -very- low. He explained that while there has been cases of young people developing it, it's incredibly rare. At any rate he wants to continue to monitor my situation. Both on an MS and MND front. Which I definitely appreciate.
So at this point, while I was extremely happy to receive positive news, I suppose I'm just frustrated with the results. Both doctors are taking a "wait and see" approach in my particular case, which I understand given the circumstance / results, but I wish I knew what was really going on.
I should have be receiving some Lumbar Puncture results back in a few weeks, hopefully I'll have some more answers by then. Take care.