First, I'd like to say Thank you to anyone who responds to my posting. Anyone with ALS in my mind is a hero, especially those who are living everyday to the fullest. You are much stronger than I will ever be.
I am a 24 year old female. My symptoms started a month ago. I just noticed that I am significantly weak/trembly/shaky all over. When I try to support myself with an arm or leg, that part just trembles.
Last week, I got out of bed in the middle of the night and had temporary paralysis of my right leg. I fell to the floor and it took 3 minutes for the strength t come back in my leg. I was then able to walk fine.
I seen a GP and a neurologist who said my symptoms matched three things; stroke, MS or a tumor. All of which he said I did not have. He did not even mention ALS. I actually never heard of ALS until I went googling...He did a physical exam, tested me strenght, reflexes and just passed it off as my leg falling to sleep, even tho there were no classic "pins and needles".
The day after this happened, my leg felt "weird", but then following three days after it was fine. Now for the last few days, the weird feeling is back. I want to say weak, but I feel it mostly when my leg is at rest, usually lying down in bed. I would describe it as an uncomfortable, tension, jittery feeling.
Basically I was looking for insight on my symptoms from someone who has ALS, or has more info than I do. My questions are:
1) Is temporary paralysis with ALS a symptom? I was thinking that if you had ALS weakness, your strenght doesnt come back a couple of minutes later, rather it would be permanent. any ideas?
2) Would my neurologist notice a true weakness with a physical exam?
3) Does ALS ever start with general weakness all over the body?
4) Is it like a feeling in your leg as you are at rest or rather a real weakness? ( I can still walk, run, walk on toes, heels, jump up stairs).
Please anyone who can provide relief, reassurance or accurate information would mean so much. I am going on vacation tomorrow morning and don't want this dark cloud of worry over my head. Thanks for your time. God Bless.
I am a 24 year old female. My symptoms started a month ago. I just noticed that I am significantly weak/trembly/shaky all over. When I try to support myself with an arm or leg, that part just trembles.
Last week, I got out of bed in the middle of the night and had temporary paralysis of my right leg. I fell to the floor and it took 3 minutes for the strength t come back in my leg. I was then able to walk fine.
I seen a GP and a neurologist who said my symptoms matched three things; stroke, MS or a tumor. All of which he said I did not have. He did not even mention ALS. I actually never heard of ALS until I went googling...He did a physical exam, tested me strenght, reflexes and just passed it off as my leg falling to sleep, even tho there were no classic "pins and needles".
The day after this happened, my leg felt "weird", but then following three days after it was fine. Now for the last few days, the weird feeling is back. I want to say weak, but I feel it mostly when my leg is at rest, usually lying down in bed. I would describe it as an uncomfortable, tension, jittery feeling.
Basically I was looking for insight on my symptoms from someone who has ALS, or has more info than I do. My questions are:
1) Is temporary paralysis with ALS a symptom? I was thinking that if you had ALS weakness, your strenght doesnt come back a couple of minutes later, rather it would be permanent. any ideas?
2) Would my neurologist notice a true weakness with a physical exam?
3) Does ALS ever start with general weakness all over the body?
4) Is it like a feeling in your leg as you are at rest or rather a real weakness? ( I can still walk, run, walk on toes, heels, jump up stairs).
Please anyone who can provide relief, reassurance or accurate information would mean so much. I am going on vacation tomorrow morning and don't want this dark cloud of worry over my head. Thanks for your time. God Bless.
