ALSFORUMS.COM   - ALS/MND Support Group   - Fibromyalgia Support Group   - PLS Support Group   - PBP Support Group   - PMA Support Group   -  
Old 03-05-2011, 10:10 PM   #1 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2011
City: atlanta
State: ga
Country: US
Diagnosed: 00/0000
Posts: 22
CoreyMcIntyre06 is on a distinguished road
Default The ALS home test

Now I'm not saying that this is by any means a hundred percent, but for those of you really worried about ALS like symptoms I don't think it would hurt to get a buddy and try them out. At the vary least go ahead and get ready to go see a neuro, then maybe get a friend to do these with you once a month, I mean if it's serious business it should get worse right? If you've not no progression in a few months then its REAL doubtful it's ALS right?

CoreyMcIntyre06 is offline  
Old 03-05-2011, 10:27 PM   #2 (permalink)
Al
Extremely Helpful Member
Registered Member
 
Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Posts: 8,030
Al is on a distinguished road
Send a message via Yahoo to Al Send a message via Skype™ to Al
Default Re: The ALS home test

I've got a bad feeling about allowing this link. I think all the scared will be doing these tests and come back convinced they have ALS. The problem is having a friend test you is useless because they have no value to assess to your strength and wouldn't remember hoy strong you felt last month. My advice: Don't even go there. It's posted by a worrier. Nuff said.

AL.
Al is offline  
Old 03-05-2011, 10:35 PM   #3 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2011
City: atlanta
State: ga
Country: US
Diagnosed: 00/0000
Posts: 22
CoreyMcIntyre06 is on a distinguished road
Default Re: The ALS home test

That makes sense, my only goal here was to give folks something proactive to do in the meantime but I can see how it could also very reasonably throw fuel on the fire. My apologizes.
CoreyMcIntyre06 is offline  
Old 03-05-2011, 10:39 PM   #4 (permalink)
Al
Extremely Helpful Member
Registered Member
 
Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Posts: 8,030
Al is on a distinguished road
Send a message via Yahoo to Al Send a message via Skype™ to Al
Default Re: The ALS home test

The more I thought about it and reading more of Corey's posts, there is just no way I want the misery that link would cause to our members having everyone trying those tests and being convinced they have ALS because Yahoo says they must have it. Don't like doing it but it would give the worry warts more ammo.

AL.
Al is offline  
Old 03-05-2011, 10:41 PM   #5 (permalink)
Member
Registered Member
 
pumpdoc's Avatar
Join Date: 2010
City: San Marcos
State: California
Country: US
Diagnosed: 02/2010
Posts: 131
pumpdoc is on a distinguished road
Default Re: The ALS home test

My neuro has been treating ALS for 25 years and it took 18 months to come out an say I have ALS.
pumpdoc is offline  
Old 03-05-2011, 10:52 PM   #6 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2011
City: atlanta
State: ga
Country: US
Diagnosed: 00/0000
Posts: 22
CoreyMcIntyre06 is on a distinguished road
Default Re: The ALS home test

Wording was inappropriate I guess, like I stated though I wasn't trying to say that this little article held in its power more than any guy with a 8 year med degree. I just figured it would help folks with their anxiety about things, at least untill they could go through proper channels. But yeah, your right it could just as easily have folks second geussing themselves, messing up once and then flipping out, or something far worse. I dunno, I wanted to help out if I could and not just ***** an moan you know?
CoreyMcIntyre06 is offline  
Old 03-05-2011, 11:06 PM   #7 (permalink)
Extremely Helpful Member
Registered Member
 
trfogey's Avatar
Join Date: 2008
City: Raleigh
State: NC
Country: US
Diagnosed: 07/2007
Posts: 2,041
trfogey is on a distinguished road
Default Re: The ALS home test

There's only one question in the best home ALS test. No buddies necessary. No strange physical contortions necessary. No late-night clicking on WWW links necessary.

--> What does your neurologist say? <--

If your symptoms aren't serious enough for you to ask your family doctor about them it's doubtful that you have anything more than annoyances going on. Otherwise, why are you waiting?

If you haven't convinced your family practice doctor enough to get a neuro referral, you almost certainly don't have it.

If your neuro says you don't have it, believe him.

And if your "neurologist" is Dr. G88gle (or any other Web MD), the answer is worth what you paid for it.
trfogey is offline  
Old 03-06-2011, 07:57 AM   #8 (permalink)
Senior Member
Registered Member
 
Bad Balance's Avatar
Join Date: 2010
City: Atlanta
State: GA
Country: US
Diagnosed: 12/2010
Posts: 772
Bad Balance is on a distinguished road
Default Re: The ALS home test

This post reminds me of our other "concerned" high school warrior.

Someone trolling to pick up attention.
Bad Balance is offline  
Old 03-06-2011, 09:59 AM   #9 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2011
City: atlanta
State: ga
Country: US
Diagnosed: 00/0000
Posts: 22
CoreyMcIntyre06 is on a distinguished road
Default Re: The ALS home test

Trolling implies a need or want to start things with people, and I apologized. No sir, no troll here.
CoreyMcIntyre06 is offline  
Old 03-27-2011, 03:34 PM   #10 (permalink)
New Member (Say Hi)
Registered Member
Join Date: 2010
City: Irving
State: tx
Country: US
Diagnosed: 00/0000
Posts: 19
Noirvault is on a distinguished road
Default Re: The ALS home test

If I left my friends up to diagnosing me they would come back with 42 zany things I'm dying from since birth up to and including every time my mother spanked me. Hell, they all have depression, bi-polar, panic disorders and every other possible thing they've ever seen on Opra. I wouldn't be to shocked if they have fingernails growing out of their ears too.
I'll leave the diagnosing up to my doc who sends me to specialist whose offices are 23 blocks through a maze of secret tunnels in the hospital that takes a staff of highly skilled direction finders to find. No wonder I miss so many appointments.
Noirvault is offline  
Closed Thread

Tags
als, friend, progression, symptoms, test, tests, worried


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search


Similar Threads for: The ALS home test
Thread Thread Starter Forum Replies Last Post
Going Home/Staying in Hospital on a Vent + What is day to day life like on home vent? DavidS Current Caregivers (CALS) 9 01-19-2011 11:48 AM
Any other test APL55 General Discussion About ALS/MND 2 11-13-2010 04:02 PM
emg test just me Do I Have ALS? Is This ALS? 2 04-27-2008 10:58 PM
EMG/NCS Test lhagsjr Do I Have ALS? Is This ALS? 1 06-04-2007 10:53 AM


    
   
   
   
   
  ALSforums - Get help and support with ALS/MND