Karin Bolette
Active member
- Joined
- Mar 14, 2010
- Messages
- 44
- Reason
- PALS
- Diagnosis
- 03/2010
- Country
- CA
- State
- Ontario
- City
- Toronto
Hi-
I got my MRI at 4:30 in the morning. Revealed no neurological problems but nearly all my vert are damaged with arthritis and osteoarthritis and several compressed disks. Says my brain stem is alright and no pressure from scare tissue build up from the arthritis that would cause my bulbar symptoms.
While I now have a reason for the pain in my back, neck and head, it doesn't explain my bulbar and progressive weakness in my limbs.
I have several areas of swelling on my head which is believed to be a respones to bone and tissue damage from the arthritis- makes sense, I'll accept that. But when I asked why did those areas not show up on the MRI but did on ultrasound, my doctor said MRI's are not as senitive as we are believed they are.
I was shocked to hear that from my doctor. I'd suspected that but to be told means no findings on an MRI does not mean there are no problems. So MRI's aren't the be all and end all. :twisted:
So MG and ALS are still on the back burner and my doctor has agreed to another EMG next summer to chart only changes. If there's no decline then who knows.
Take care everyone- Blessings and happy happy valentine's- Karin
I got my MRI at 4:30 in the morning. Revealed no neurological problems but nearly all my vert are damaged with arthritis and osteoarthritis and several compressed disks. Says my brain stem is alright and no pressure from scare tissue build up from the arthritis that would cause my bulbar symptoms.
While I now have a reason for the pain in my back, neck and head, it doesn't explain my bulbar and progressive weakness in my limbs.
I have several areas of swelling on my head which is believed to be a respones to bone and tissue damage from the arthritis- makes sense, I'll accept that. But when I asked why did those areas not show up on the MRI but did on ultrasound, my doctor said MRI's are not as senitive as we are believed they are.
I was shocked to hear that from my doctor. I'd suspected that but to be told means no findings on an MRI does not mean there are no problems. So MRI's aren't the be all and end all. :twisted:
So MG and ALS are still on the back burner and my doctor has agreed to another EMG next summer to chart only changes. If there's no decline then who knows.
Take care everyone- Blessings and happy happy valentine's- Karin