Karin Bolette
Active member
- Joined
- Mar 14, 2010
- Messages
- 44
- Reason
- PALS
- Diagnosis
- 03/2010
- Country
- CA
- State
- Ontario
- City
- Toronto
Good day to everyone and a very happy New Year:
:!:
AS I posted a couple of months ago, I do not have ALS but my symptoms present as such. Relief and a thousand questions. I had a CT done of my body for other reasons and it revealed degeneration of my spine through out it. Ten years ago I stood 5'7" and am now 5'5". I was shocked. I've had neck problems since I was in my 20's, I'm now 57. I did nursing for 20 years so always assumed it was part of the job and put up. I am finally after asking neuro after neuro having an MRI done of my head, the bulbar region, my spinal cord and my entire spine. The unfortunate part many of these disorders are progressive but some are not. Surgery can cure some. But it's a wait now.
Our federal government, those who know him "Harper" was closed down Chalk River for good. He released this info 2 days before Christmas and said Canada will get their Isotopes from Russia. I was fortunate enough to have mine booked for June 2011, on Dec22, 2010. They are now booking into the winter of 2012! That's our Harper- determined to destroy our medical system here in Canada.
Anyways there are back and head problems that do mic ALS. After some research one can have difficulty swallowing, breathing, weakness through out the body and that these diseases are progressive. The only difference I have found is that while the nerves maybe pinched or damaged at source they do not document as damaged nerves within the muscles, thus EMG's are not useful as they are clean.
So those of you who have been told it is not ALS, try to accept it and go back to the very begining of your symptoms and re-evaluate what you are really suffering from. Don't waste your time being afraid of your symptoms being ALS when there may be possible cures available. After all is our symptoms that interfer with our lives and not the diease. Karin
:!:
AS I posted a couple of months ago, I do not have ALS but my symptoms present as such. Relief and a thousand questions. I had a CT done of my body for other reasons and it revealed degeneration of my spine through out it. Ten years ago I stood 5'7" and am now 5'5". I was shocked. I've had neck problems since I was in my 20's, I'm now 57. I did nursing for 20 years so always assumed it was part of the job and put up. I am finally after asking neuro after neuro having an MRI done of my head, the bulbar region, my spinal cord and my entire spine. The unfortunate part many of these disorders are progressive but some are not. Surgery can cure some. But it's a wait now.
Our federal government, those who know him "Harper" was closed down Chalk River for good. He released this info 2 days before Christmas and said Canada will get their Isotopes from Russia. I was fortunate enough to have mine booked for June 2011, on Dec22, 2010. They are now booking into the winter of 2012! That's our Harper- determined to destroy our medical system here in Canada.
Anyways there are back and head problems that do mic ALS. After some research one can have difficulty swallowing, breathing, weakness through out the body and that these diseases are progressive. The only difference I have found is that while the nerves maybe pinched or damaged at source they do not document as damaged nerves within the muscles, thus EMG's are not useful as they are clean.
So those of you who have been told it is not ALS, try to accept it and go back to the very begining of your symptoms and re-evaluate what you are really suffering from. Don't waste your time being afraid of your symptoms being ALS when there may be possible cures available. After all is our symptoms that interfer with our lives and not the diease. Karin