I have been reading messages on this forum for a few weeks. I am so impressed with how kind and gracious everyone of you is, especially when it comes to alleviate the worries of others about this disease, people that may very well be healthy. You guys are truly inspiring.
A few months back I lost a dear uncle to ALS, today I fear this disease may cause more pain to my family. My symptoms started a few months back. I would have sudden pain in the tip of my toe or in my foot that would last me a day, go away then return for another day. This summer I had a prolonged cough that would not go away for three months, it was accompanied by night sweats, strong headaches and extreme fatigue. My regular doctor and an infectious disease doctor specialist tested me for all kinds of infections as well as autoimmune disease such as lupus, Lyme etc...all negative. A month and half later, just as my night sweats ended I started to notice problems with the coordination of my right hand. In a matter of days I started to feel occasional shooting pain in my arms, wrist, finger and hand, an extreme feeling of fatigue, shortness of breath and incredible tiredness in arms and legs. I lift my child up for 5 minutes and I feel as my muscle is as tired as if I was at the gym for hours. Aside for the extreme weakness in my upper body, another strange sensation is a "tension', it is mildly painful, but I feel it as I extend my arms open to my side. It feels as something is pulling inside my arms.
A neurologist had me schedule a brain MRI with and without contrast for Dec 22, I would appreciate any input about similarities with your personal experience.
May God bless you and your families.
A few months back I lost a dear uncle to ALS, today I fear this disease may cause more pain to my family. My symptoms started a few months back. I would have sudden pain in the tip of my toe or in my foot that would last me a day, go away then return for another day. This summer I had a prolonged cough that would not go away for three months, it was accompanied by night sweats, strong headaches and extreme fatigue. My regular doctor and an infectious disease doctor specialist tested me for all kinds of infections as well as autoimmune disease such as lupus, Lyme etc...all negative. A month and half later, just as my night sweats ended I started to notice problems with the coordination of my right hand. In a matter of days I started to feel occasional shooting pain in my arms, wrist, finger and hand, an extreme feeling of fatigue, shortness of breath and incredible tiredness in arms and legs. I lift my child up for 5 minutes and I feel as my muscle is as tired as if I was at the gym for hours. Aside for the extreme weakness in my upper body, another strange sensation is a "tension', it is mildly painful, but I feel it as I extend my arms open to my side. It feels as something is pulling inside my arms.
A neurologist had me schedule a brain MRI with and without contrast for Dec 22, I would appreciate any input about similarities with your personal experience.
May God bless you and your families.