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AnxiousAn

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Learn about ALS
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Singapore
Hi All!

First things first... thank you for reading my thread.

I am an active 28 year old who is currently experiencing muscular problems. 6 months back, i developed a rythmic, up and down motion right index finger twitch which would come and go during and after gym sessions. Accompanying it was a pain right wrist (like a sprain)... No weakness/atrophy was noticed (didn't know much about ALS/MND then)... I cast away all fears and put the twitching down to over exertion (I work out 6 days a week). If I remember correctly... the twitching subsided and went away until 4 weeks ago.

4 weeks ago, my right index finger developed a non rythmic, jerky towards thumb motion... this started bothering me as it was happening almost every day. So to Dr Google I went and found myself a list of nerve/brain disorders. A week into my right index twitch, I started developing bodywide twitches (calves, hamstring, thigh, groin, butt, arms, face, scalp, bicep, forearms... THE ENTIRE BODY INFACT). A week later, I would experience internal tremors (legs, arms, neck, lower/upper limb). Went to the GP but he wasn't able to understand my symptoms and referred me to a neurologist. A few days after the GP visit, I would develop body jerking movements... My lower limb would jerk... my arms... sometimes my head would just jerk backwards. It was a tough time for me and I often asked myself why am I experiencing all these in such a short time. I reassured myself by telling me that there's isn;t any weakness/atrophy accompanying all these. However, last week, i realized that my right fingers were rather stiff and that I could feel slight weakness in my right fingers (my good hand). Since then, the twitching has spread to my right thumb and occasionally, my other fingers (both left and right).

I too have an uncomfortable shoulder that would start aching it i were to have a long day. I tried to stay positive and calm despite all these but its not as easy as i thought it to be... i was constantly scouring the net for answers... but to no avail...

Last tues, the neurologist kinda ruled out parkinson's and told me that chances are very slim that I may be suffering from ALS... as my symptoms are not consistent to ALS symptoms (after the standard neuro examination) and told me that I have myoclonus. He ordered me an eeg and a MRI with contrast and sent me off, not before referring me to a movement specialist who will read access me further and read me my results for EEG and MRI.

Since a month ago, I have lived each day in fear and mental pain... In all honesty, i am extremely afraid but try to calm myself down. Today, i experienced something new 9on top of all the aforementioned symptoms)... during a game of soccer, 45 mins into the game, both my calves would twitch (single twitch or multiple fast twitches of the same part) (electric shock like... or like as though someone is punching you from from inside your body). Whenever, I was standing still, both my calves would twitch (electric shock like... or like as though someone is punching you from from inside your body. And when i do run.. it would go away... only for the twitch to return when im standing still.

I read that BFS twitches comes only when you are resting and that ALS twitches occur when you are resting/moving the muscle.

Your thoughts on this?

Cheers!

ND
 
Firstly... completely wrong forum, you were looking for "Do I have ALS?". It's much farther up the list.

Your doc is right, your symptoms are not ALS symptoms. Dr Google is a bad doctor, stay away... he ranks results based on links, not any real life measurement. If you typed in the symptoms of one of my diseases, HSP, you would find ALS comes up a lot and the actual disease... not at all! Your twitching will get worse as the anxiety does, and the anxiety worse as you concentrate on the twitches/electric feelings. You need to get your head out of this stuff for a few weeks and do something else.
 
The twitches you are having are called myokymia, rather than fasciculations. Doesn't sound like ALS, but your neurologist has already said that. It's nerve wracking waiting for tests and answers, they are never instant . You justneed to take a deep breath and keep getting on with life. The EEG will hopefully rule out any epileptiform activity causing the myoclonus. If not then treatment is available. Best of luck with the tests and I hope they get to the bottom of it all

aly
 
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