stargrave
Member
- Joined
- Feb 14, 2010
- Messages
- 10
- Reason
- Learn about ALS
- Country
- Mex
- State
- DF
- City
- Mexico City
Hello everybody.
There are a lot of question marks regarding ALS and MND in general, because there are a lot of conditions both related and not, that mimic one or more of the ALS symptoms and presentations.
Most people that are not PALS, like me, drop here and into many other forums searching for answers that sometimes docs don't have or don't want to give.
I have to say that this is one of the best sites, not only because PALS are running the show, sharing their knowledge from their own private battlefield, but because the professionalism showed, that I wish that at least 50% of the doctors I've visited should have.
Being said this, here is my question.
It's often said that ALS, curses with no pain, that it doesn't have a sudden onset, and that it doesn't have recovery and remission periods, meaning that once it starts, unfortunately, there's no way back.
From extensive reading in cases, reports, and even some answers in here I've learned that, even if this stands true, there are many cases were is the opposite, even in the great storieas of hope where a miracle happens(one that I wish for every PAL in the world).
So amongst all that stuff I've read that ALS has a "focalized" rather than a "widespread" presentation, like BFS, just to name a "widespread" symptom's presentation syndrome.
The question heer is: Is this true?
Because even for a definitive diagnose, you got to have damage or affectation in different spots, to confirm that both lower and upper neurons are affected.
Then again I've read extensively that, in the case of Twitching, benign twitching usually shows up in a widespread presentation, and ALS twitching is more focalized.
I've read that the definitive symptoms is weakness, and then everything else, so back to the questions.
Does ALS symptoms affected you in a focalized or a widespread way?
Do you have, for example, a weak leg, and you don't have many symptoms elsewhere until this limb becomes really affected(weak)? or You might have this as your primarily affected leg, but you also experience symptoms in different places of your body
Thanks and great days for everyone.
There are a lot of question marks regarding ALS and MND in general, because there are a lot of conditions both related and not, that mimic one or more of the ALS symptoms and presentations.
Most people that are not PALS, like me, drop here and into many other forums searching for answers that sometimes docs don't have or don't want to give.
I have to say that this is one of the best sites, not only because PALS are running the show, sharing their knowledge from their own private battlefield, but because the professionalism showed, that I wish that at least 50% of the doctors I've visited should have.
Being said this, here is my question.
It's often said that ALS, curses with no pain, that it doesn't have a sudden onset, and that it doesn't have recovery and remission periods, meaning that once it starts, unfortunately, there's no way back.
From extensive reading in cases, reports, and even some answers in here I've learned that, even if this stands true, there are many cases were is the opposite, even in the great storieas of hope where a miracle happens(one that I wish for every PAL in the world).
So amongst all that stuff I've read that ALS has a "focalized" rather than a "widespread" presentation, like BFS, just to name a "widespread" symptom's presentation syndrome.
The question heer is: Is this true?
Because even for a definitive diagnose, you got to have damage or affectation in different spots, to confirm that both lower and upper neurons are affected.
Then again I've read extensively that, in the case of Twitching, benign twitching usually shows up in a widespread presentation, and ALS twitching is more focalized.
I've read that the definitive symptoms is weakness, and then everything else, so back to the questions.
Does ALS symptoms affected you in a focalized or a widespread way?
Do you have, for example, a weak leg, and you don't have many symptoms elsewhere until this limb becomes really affected(weak)? or You might have this as your primarily affected leg, but you also experience symptoms in different places of your body
Thanks and great days for everyone.