Latest Neuro Appt

[cajebe]

I saw the doctor yesterday and feel just as confused as before. He did the exam and a strength test. He said my strength looks good and that's good but, he said he doesn't know what the cause of my foot atrophy is. He is going to do a EMG next month. He told me to start taking neurontin for my cramping and twitching. He said that he thinks the next EMG to be normal since the one I had in the spring was. Well, that sounds great but, why then do I have a atrophied foot and awful cramping with twitching. Is the neurontin really helpful and are the side effects bad? Also, any thoughts on what could be going on with my foot ?

 

[Al]

Use the search above, put in neurontin , clock posts and there's lots to read.

AL.

 

[Alyoop]

He will be repeating the EMG to be on the safe side. Surely it's good that he cares enough to continue looking for a reason. Why don't you ask him that exact question? Then you will have an expert answer.

Sometimes it takes a long time for neurological problems to full "show themselves" . I was told that and it took 3 years. Doesn't mean it's anything sinister, but it just maybe too soon to really know what's going on.

Just ask him next time you see him

A ly

 

[RoadKill]

I saw the doctor yesterday and feel just as confused as before. He did the exam and a strength test.

Who is the doctor? Where?

 

[cajebe]

Hi, Thanks for the replies. Al, I will do the search on my new meds. Aly, I did ask the doctor what he thinks it is. I asked if he thought it was als or maybe cmt. He said he does not think it is cmt. As far as als he thinks that my strength is good. I am relieved at that but, he confirmed the fact that there is atrophy in my foot. And that my balance was not very good on that side. My worry is that my other foot is cramping and twitching like crazy. It will be really had to function if my other foot get as bad. So the waiting game is on, maybe for years. I honestly don't know how I will be able to handle it. I hope the meds help with the cramping because that pain is a constant reminder of what is happening. Roadkill, The doctor is a neuro in the new england area. If you would like more info send me a private mess. and I will be happy to give you that info.

 

[cajebe]

Well, My emg is tomorrow. It was the middle of the month and the doctor needed to change it. Like most others and so scared. This is the als specialist in our area. I hope this may be able to put my fears to rest. I am sure that I will not sleep much tonight. I will update tomorrow.

 

[sadiemae]

Good Luck!

 

[Alyoop]

Yes , best of luck. You sound so much like me its not funny! I reread your posts and it was Wow! I even have the foot atrophy and had terrible cramps , which thankfully settled. The only thing that has given me the PLS as possible diagnosed is tha UMN signs.
Its terrible playing the waiting game, but if you can take a deep breath and keep yourself busy, it helps. I learnt to focus on the positive. Its a cliche but saved me a heap of anxiety.
Thinking of you and keep us in the loop
Aly

 

[Lavender Lady]

cajebe, Best of luck to you tomorrow and praying it is nothing serious.

 

[Blizna]

Wish you the best...

 

[TedH5]

Hope it goes great...let us know!

 

[abbas child]

I hope you have a good report when you return to the thread.

 

[LizT]

good luck to you. i will keep you in my thoughts

 

[Blizna]

What happened? I am anxiously awaiting your results...hope it went well and for some reason you cannot update...still hoping