SoLiDG
New member
- Joined
- Sep 20, 2010
- Messages
- 9
- Reason
- Learn about ALS
- Country
- BE
- State
- Limburg
- City
- Hasselt
Hey,
I don't want to be mr scared nr so much. I'm thinking it's not ALS, but I want to share my story and see what the people with more expierence think!
I have been to a neurologist to start with...
The story started 4 months ago, I felt weak and had some hyperventilation probably.
I been in bed for a few days and after a while I noticed fasciculations... weird.
It started in my legs (can't remember if it was both legs in the beginning).
Doctor didn't make anything of it... i was also still weak and didn't feel good.
I was scared of doing to much standing and walking as my legs would get stiff and tired.
After 3months I went to a neurologist and he didn't see me as potential ALS (i'm too young, 26) OK, sounds good and reasonable as I didn't think it was that... But I do think it's stupid to exclude the possibility because i'm young.
I have the twitches mostly in my legs (non stop) and sometimes in my arms and even my cheeks. Also my arms get stiff and irritating after using it for a while or lying in the same way for a while. and it feels like there is something stretching inside.
I try to walk more and more, but after a while my legs get very stiff and it's not that a great feeling., also my joints are stiff.
I don't have the same fitness as I had, i'm quickly tired, but I can still do things, but I do get more tired.
I went to a neurologist as I said, he did a very quick EMG... just my legs, he quickly said my muscle reaction was slightly slow...that's a polyneuropathy..and emg was over.
I have an apointment with a second neurologist now because I found him a bit strange.
Is there a difference on the EMG that he can for so sure see it's not ALS but polyneuropathy (slightly) and he doesn't need to check more?
And yes, are the way I feel a way ALS could be or not?
Also I have more twitches after I use my legs (longer walks etc)
I have those fasciculations for 4months now, and I do get B12 injections as a trial, and it gives some energy so that's nice, but I probably don't have a shortage (test high but they gave me pills for 2months with b12, so less good picture here).
I don't really think ALS should be too hard on my mind, but maybe I should still not exclude it? I would love some expierenced views on it thx!
I don't want to be mr scared nr so much. I'm thinking it's not ALS, but I want to share my story and see what the people with more expierence think!
I have been to a neurologist to start with...
The story started 4 months ago, I felt weak and had some hyperventilation probably.
I been in bed for a few days and after a while I noticed fasciculations... weird.
It started in my legs (can't remember if it was both legs in the beginning).
Doctor didn't make anything of it... i was also still weak and didn't feel good.
I was scared of doing to much standing and walking as my legs would get stiff and tired.
After 3months I went to a neurologist and he didn't see me as potential ALS (i'm too young, 26) OK, sounds good and reasonable as I didn't think it was that... But I do think it's stupid to exclude the possibility because i'm young.
I have the twitches mostly in my legs (non stop) and sometimes in my arms and even my cheeks. Also my arms get stiff and irritating after using it for a while or lying in the same way for a while. and it feels like there is something stretching inside.
I try to walk more and more, but after a while my legs get very stiff and it's not that a great feeling., also my joints are stiff.
I don't have the same fitness as I had, i'm quickly tired, but I can still do things, but I do get more tired.
I went to a neurologist as I said, he did a very quick EMG... just my legs, he quickly said my muscle reaction was slightly slow...that's a polyneuropathy..and emg was over.
I have an apointment with a second neurologist now because I found him a bit strange.
Is there a difference on the EMG that he can for so sure see it's not ALS but polyneuropathy (slightly) and he doesn't need to check more?
And yes, are the way I feel a way ALS could be or not?
Also I have more twitches after I use my legs (longer walks etc)
I have those fasciculations for 4months now, and I do get B12 injections as a trial, and it gives some energy so that's nice, but I probably don't have a shortage (test high but they gave me pills for 2months with b12, so less good picture here).
I don't really think ALS should be too hard on my mind, but maybe I should still not exclude it? I would love some expierenced views on it thx!