Old 09-18-2010, 09:06 PM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Ozgur Ozgur is offline
New Member (Say Hi)
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Question Terrible hypochondria or what?

Hi all. I read many threads until decide to open this thread. Oh and sorry about my english.

First of all I went 4 neuros. All was said "you are not als". But i think they are not expert of MND so they were maybe misdiagnosed me.

My history was began 1 month ago with widespread fasciculations. They were all of my body but especially at my right leg. I've spent my time to motor neuron diseases from begining until now. My right hip has some pain and a "thing" which i couldnt explain. Actually my whole leg acting weird. My left leg is okay but I feel something develops at it (not anything noticable yet). I dont know i have a weakness because i can do everything after 1 month. But my walking is weird. I noticed some balance problems when walking. It was appear 1 week ago. My 4th neuro was write her report this: "legs has brisk reflexes". Absent babinski (by 2 different doctors), negative romberg (by me).

My other symptoms:

- increased saliva (no drooling, especially when i concentrate to my mouth)
- wrist pain when i use them too much (both of my leg)
- swallowing diffuculty (come and go)
- burning sensation (2 or 3 times at any location)
- frequent urination (last 1 week)

My brain MRI okay. Cervical MRI report: "cervical lordos is flatten" and some diffuse bulgings.. nothing at spinal cord. My EEG report: "cerebral bioactivity has mild disturbance". My blood work report: "B12 deficiency" it is 166.


I had an EMG about 2 days ago and my doctor said "it is completely normal". Here is my questions.

1. Is a clean EMG means; "fasciculations is not due to ALS or LMN" ?
2. She did not tested me from bulbar area. Is anything appears on EMG if i have bulbar onset? Therewithal she didnt pined to my hips. Is this EMG tottaly right?
2. In MND, Is increasing saliva means a real increasing or its because of swallowing problem? or both? I read many different comments.
3. Is this symptoms familiar for PLS?

Thanks for reading or not
Ozgur is offline  
Old 09-18-2010, 09:30 PM #2 (permalink)
New Member
 
Join Date: 2010
City: Woodbridge
State: Va
Country: US
Diagnosed: 03/2010
Interest: I have been diagnosed with ALS.
Posts: 81
APL55 is on a distinguished road
APL55 APL55 is offline
New Member
Join Date: 2010
City: Woodbridge
State: Va
Country: US
Diagnosed: 03/2010
Interest: I have been diagnosed with ALS.
Posts: 81
APL55 is on a distinguished road
Default Re: Terrible hypochondria or what?

I read on this site that a clean EMG is a good thing,if you think you were not diagnosed right, find a ALS clinic in your area they should be able to help you,your saliva and swallowing could be caused acid reflux,not sure what you mean about burning sensation,I hope you find an answer and some piece of mind.
APL55 is offline  
Old 09-18-2010, 09:32 PM #3 (permalink)
nishant's Avatar
New Member
 
Join Date: 2009
City: Madison
State: WI
Country: US
Diagnosed: 09/2007
Interest: I have been diagnosed with ALS.
Posts: 68
nishant is on a distinguished road
nishant nishant is offline
New Member
nishant's Avatar
Join Date: 2009
City: Madison
State: WI
Country: US
Diagnosed: 09/2007
Interest: I have been diagnosed with ALS.
Posts: 68
nishant is on a distinguished road
Default Re: Terrible hypochondria or what?

you definitely have ALS, definitely your doctor can be wrong but Google can't be and for sure some stranger who just confirmed that you have ALS isn't wrong either.

please trust your doctor more and Google less.
nishant is offline  
Old 09-18-2010, 10:33 PM #4 (permalink)
BarryG's Avatar
Extremely Helpful Member
 
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
BarryG BarryG is offline
Extremely Helpful Member
BarryG's Avatar
Join Date: 2008
City: Hinton
State: Alberta
Country: CA
Diagnosed: 02/2008
Interest: Can't eat, drink or talk but still smiling!
Posts: 2,999
BarryG is on a distinguished road
Default Re: Terrible hypochondria or what?

Terrible hypochondria
BarryG is offline  
Old 09-18-2010, 10:37 PM #5 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
Default Re: Terrible hypochondria or what?

Not being a doctor, I'd agree with the others that it's hypochondria. You've had symptoms 1 month saw 4 Neuro's and they're ALL idiots? I think you need a different doctor.

AL.
Al is offline  
Old 09-20-2010, 06:45 AM #6 (permalink)
New Member
 
Join Date: 2009
City: Bilbao
State: Bizkaia
Country: ES
Interest: I am interested in learning about ALS/MND.
Posts: 27
_Saj_ is on a distinguished road
_Saj_ _Saj_ is offline
New Member
Join Date: 2009
City: Bilbao
State: Bizkaia
Country: ES
Interest: I am interested in learning about ALS/MND.
Posts: 27
_Saj_ is on a distinguished road
Default Re: Terrible hypochondria or what?

Put yourself some limit.

If you decide go and visti a Doc you should make the effort for beliving in whatever he tells you.
I had some big ALS fears adn had a real hard time. But I became aware that I had to draw a line somewhere. You can produce yourself strange sympthoms if you look for them . Specially if you're looking for "sensations".

In your case 4 neuros and a clean EMG seems a good and solid line to me.

- increased saliva (no drooling, especially when i concentrate to my mouth)
so you got more saliva when you "search for it".. that's doesn't sees a solid sympthom

- wrist pain when i use them too much (both of my leg)
mines ached too if I use them too much... I'm not a doctor but it could me a myriad of things.

- swallowing diffuculty (come and go)
Sympthom of anxiety and fear


- burning sensation (2 or 3 times at any location)
you got to become aware that a "sensation" is not a sympthom until it turns into something somehow "measurable"


- frequent urination (last 1 week)
Sympthom of anxiety and fear


Please relax

Last edited by _Saj_ : 09-20-2010 at 06:50 AM
_Saj_ is offline  
Old 09-28-2010, 05:20 AM #7 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Ozgur Ozgur is offline
New Member (Say Hi)
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Red face emg results

Hi, me again, hypocondriac. Thanks for all your replies. I generate some new symptoms.

Shortness of breathing. I need to take a deep breath often. And excess yawning. I yawned 30 times yesterday.

I had an another EMG today. My neuro first find a denervation on one point at my right leg. Then he pin the needle same area 2 times but this time she didnt saw anything. She called another emg specialist and pins the needle at same point/area. still nothing.

What is that mean? Is this possible to find a denervation first but another tries are not?

Here is the results.



Ozgur is offline  
Old 09-28-2010, 08:29 AM #8 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: Hasselt
State: Limburg
Country: BE
Interest: I am interested in learning about ALS/MND.
Posts: 9
SoLiDG is on a distinguished road
SoLiDG SoLiDG is offline
New Member (Say Hi)
Join Date: 2010
City: Hasselt
State: Limburg
Country: BE
Interest: I am interested in learning about ALS/MND.
Posts: 9
SoLiDG is on a distinguished road
Default Re: Terrible hypochondria or what?

It's easy imo... go the B12 line.
You need 2injections per week for up until 2 years (that's when neurological things are there).
Might help, but needs some time!
SoLiDG is offline  
Old 09-28-2010, 12:06 PM #9 (permalink)
TedH5's Avatar
Very Helpful Member
 
Join Date: 2010
City: McDonough
State: GA
Country: US
Diagnosed: 08/2010
Interest: I have been diagnosed with ALS.
Posts: 1,146
TedH5 is on a distinguished road
TedH5 TedH5 is offline
Very Helpful Member
TedH5's Avatar
Join Date: 2010
City: McDonough
State: GA
Country: US
Diagnosed: 08/2010
Interest: I have been diagnosed with ALS.
Posts: 1,146
TedH5 is on a distinguished road
Default Re: Terrible hypochondria or what?

Was this Neuro number 5? What did they tell you after the EMG? Did they tell you that you were OK? I hope so. What about the "EMG specialist" you said that came in, what did they tell you about your EMG? It is evident that you are extremely scared. I wish there was an easy way for all of us to convince you that you do not have ALS. What first made you think you potentially had MND? Was it the internet? Remember the internet can not think. It can not make decisions. It just regurgetates info sometimes it connects to the search subject and sometimes it doesn't. If I google my name on the first page their are 10 results. 3 of the 10 results are connected to me. The other 7 are not. Google says that I someone with my name (call it my symptom) is a Dr. Well I know that I am not a Dr so google is wrong. Google says that someone with my name (again call it the symtom) lives in Honolulu Hawaii. Trust me my family would be shocked to know this, so again Google is wrong. Then there is a picture with someone of someone with my symptom (again my name) walking on the Golden gate brige. I have never been to the Golden Gate Bridge. I hope you get the point. Believe me I am not ridiculing you I am trying to reassure you that only a Dr can tell you what is wrong. Not the internet and not me (even though Google said I am a Dr) or anyone else on this forum. I plead with you to trust your Doctors and enjoy your life. You will be much happier! I wish you much health and happiness! Any questions ever please feel free to ask, we will always answer to the best of our abilities.
TedH5 is offline  
Old 09-28-2010, 04:21 PM #10 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Ozgur Ozgur is offline
New Member (Say Hi)
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Default Re: Terrible hypochondria or what?

@SoLiDG

I used injection of B12 5 times and B12 drugs 2 weeks. but never help. you said it must 2 years? hmm..

@Ted

Yes i'm absolutly understand you and all people that tell me "definitely you havent got any MND". And yes she is my 5th neuro. She said "i found a denervation first, but i dont find anything when i look at same area again." She pin the needles 4 times at the same small area but there is nothing found except first one. I want to know that what is the mean of "first there is a denervation but after its dissappeared" sentence!? Is it always appear to monitor if there is a denervation at that area?

She tell me "we want people to come again if we found any abnormality. But your EMG was okay (even your NCS results are perfect) so i dont want any control EMG. Anyway if you'll realise a weakness f.e. you'll have trouble to move your arm/leg. Come again" . My 4th neuro said "your legs has brisk reflexes". 5th neuro said "brisk reflexes but not too much, almost normal". EMG specialist said that "i think there is an atrophy at right ankle area or hypertrophy at left ankle area.." But 5th neuro said "no its not". Funny thing is that "i said this atrophy thing to my third neuro." She declined. Is atrophy came this type? Without actual weakness?

My story was began with widespread fasciculations/twitches and yes i googled "twitches" and found ALS. This was happened about 1.5 month ago. I did many many strength tests. My right leg is being abnormal (i couldnt explain what i feel) after this strenght tests. I very obsessed about ALS. I know that. I tried to throw out als tihnk to my mind but i couldnt. Because i read many many ALS stories and i realize some of their symptoms look like me. For example i read a man who gets 3 clean EMG and 9 neuro. Everyone tells him you are ok but they found he has ALS after 1 year or less. ALS comes my mind again when i read a story like this. And i'm reading a web site;/als/symptoms"]. At symptoms area; i see that i have these some of symptoms. Excessive yawning, cold leg, balance problems, excess saliva (though it passed 4 days ago), fatigue, pain, some times breathing diffuculty etc.. I couldnt understand what is the "clinical weakness" so i cannot say "i have weakness". but i realize i had foot drop at right leg 2 days ago. but not sure.. I think i'm already dorsiflexing my ankle.. I feel my right leg tighten when i walk. Other people cant see anything abnormal to my walking but i feel its weird.

So, my some symptoms came when i read that they are symptoms of ALS. I see that. I have GERD and post-nasal drip.

Last edited by Al : 09-28-2010 at 05:02 PM Reason: They don't advertise for us so we don't for them.
Ozgur is offline  
Old 09-28-2010, 05:08 PM #11 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
Default Re: Terrible hypochondria or what?

Once again, You can't believe everything you read. People lie, exagerate, post wrong information, suffer anxiety and imagine all sorts of symptoms. This is one of the best sites but even here sometimes misinformation slips through. Find a doctor you believe if you can.

AL.
Al is offline  
Old 09-28-2010, 05:21 PM #12 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Ozgur Ozgur is offline
New Member (Say Hi)
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Default Re: Terrible hypochondria or what?

Al, i'm thinking i have only one option to do; waiting. I was tired to go neuros, emg's, MR's. But waiting was more easy if my questions are answered. Everyone said no no no. I was understand but my questions still there.
Ozgur is offline  
Old 09-28-2010, 05:51 PM #13 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
Default Re: Terrible hypochondria or what?

I don't have an answer to your denervation question but wright probably does. He may see this and answer.

AL.
Al is offline  
Old 09-28-2010, 07:28 PM #14 (permalink)
TedH5's Avatar
Very Helpful Member
 
Join Date: 2010
City: McDonough
State: GA
Country: US
Diagnosed: 08/2010
Interest: I have been diagnosed with ALS.
Posts: 1,146
TedH5 is on a distinguished road
TedH5 TedH5 is offline
Very Helpful Member
TedH5's Avatar
Join Date: 2010
City: McDonough
State: GA
Country: US
Diagnosed: 08/2010
Interest: I have been diagnosed with ALS.
Posts: 1,146
TedH5 is on a distinguished road
Default Re: Terrible hypochondria or what?

Do you have ny clinical weakness? In my experience weakness showed up before twitching and before all of my muschles showed abnormal on the EMG. I can understand being concerned about a neuro as I learned that my very first was not very competent. However my next 2 have been great. If you have seen 5 I and they have given you consistent answers then I would feel safe.

Also when you have a MND then yes you usually have brisk reflexes. However having brisk reflexes does not mean you have ALS. Heck you could just have brisk reflexes and nothing wrong with you. Please keep this in mind.
TedH5 is offline  
Old 09-29-2010, 04:11 AM #15 (permalink)
New Member (Say Hi)
 
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Ozgur Ozgur is offline
New Member (Say Hi)
Join Date: 2010
City: -
State: -
Country: TR
Interest: I am interested in learning about ALS/MND.
Posts: 5
Ozgur is on a distinguished road
Default Re: Terrible hypochondria or what?

No Ted. no one told me that i have clinical weakness. What about yawning? I woke up today and yawn 9 times in 5 minutes.. I read that yawning is a reflex and could related to be a MND..
Ozgur is offline  
Closed Thread

Tags
als, balance, brain, bulbar, bulbar onset, burning, clean emg, emg, fasciculations, hip, hypochondria, mnd, mri, onset, pain, pls, problems, questions, reading, saliva, swallowing, symptoms, weakness, work, wrist


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
feeling terrible with no cause- advice? Gracious99 Current Caregivers (CALS) 30 05-21-2015 11:43 AM
How I found out I had this terrible disease Poet Chistopher Robin General Discussion About ALS/MND 7 03-25-2012 03:05 PM
MND or just another bout of hypochondria? Hans Do I Have ALS? Is This ALS? 11 12-31-2010 05:11 AM
feel terrible! brooksea Current Caregivers (CALS) 34 08-20-2009 10:43 PM
Health anxiety, hypochondria and medication Will26 Do I Have ALS? Is This ALS? 2 03-04-2009 05:49 PM
PLS is a terrible life changing experience. Gracie General Discussion About PLS 2 10-30-2007 09:59 AM


All times are GMT -5. The time now is 05:07 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016