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jamy

New member
Joined
Sep 18, 2010
Messages
3
Reason
Learn about ALS
Diagnosis
05/2010
Country
CA
State
Ontario
City
Toronto
Hello Everyone

I need to share my story with someone, because my specialist appointment is in 2 months and the waiting is killing me. It looks like a lot of people in this forum help each other, so i decided to sign up.

Well here it goes:


I am 24 and I am worried that I might have ALS. My symptoms begun 3 months ago. It started with tingling radiating to my hands, neck, head and lower legs. After a couple of days the tingling has turned to burning. Since than everything has subsided and I am constantly experiencing tingling and burning sensation in my arms.

Over the last 2 months i started to experience twitching. all over the body. The twitching now has become constant. I experience it 24/7 (mostly legs and arms). The twitching is internal and external (i can see that). I also experience constant buzzing in my feet. Also every muscle in my body starts to shake with the smallest effort (for example when i lift my leg when lying down, it starts to shake)...i don't feel tired but it is just shaking... is this an indication of muscle weakness?


In the last a month i started experience twitching in my face (spiderweb feeling). Whats weird though is that when i wrinkle my nose (flex the face muscles) I start experience tremor like twitching in the muscle around my eyes and nose. That tremor stops once I relax the facial muscles. Lastly, at the same time when the face twitches started, my tongue got numb. Just the tip. I can still sense some feeling but the texture feels different, and there is a bitter feeling taste when i rub my tonuge against the oral cavity.

My neuro appointment is in 2 months. reading about my signs and symptoms has made me feel stressed and anxious at times, and the waiting is driving me insane.

Also in the last week i noticed that i cant fully flex my biceps. And when i do flex them too my best the feel fairly soft. When I work out and doing something that requires the use of biceps, it looks like my other muscles work harder. Maybe that is how weakness appears unnoticed, because the other muscle compensate.

I would like to know if anyone experience the same symptoms or has anything to contribute. So far Dr. Google didn't bring me anything good but anxiety.

Thanks for taking the time to read
 
Nothing you have described are ALS symptoms. Try to relax. You are also too young to be a candidate. Try to stay off the internet as there is a lot of incorrect information you will come across.
 
Your chances are slim. You have sensory issues that don't usually present with ALS. Try to relax and stay off the internet. It'll make you crazy.

AL.
 
Slim! Your chances are very, very, slim! ALS is a disease of motor neurons. What you describe involves sensory issues.
 
dude check with your doctor and stop using doctor Google as internet can't diagnose you. I sometimes wonder that how much Google is responsible for increase in health care expenditure.
 
All Your symptoms point to Peripheral Nerves, playing up. That can be caused by a huge amount of things including post viral, so like the others said. Hang in there, You may find if its viral, it could be better by your appt, so that will be good.
Aly
 
Until you see a dr. and find out what you have. You do not have ALS unless a neuro tells you so and I hope they can find out what is going on and get you some help. I agree stay off of google!
 
..i don't feel tired but it is just shaking... is this an indication of muscle weakness?

I've experienced what when I'm working out while being anxious or stressed my muscles tend to shake more.

Stop testing yourself... seriously for evey test you do, anxiety will discover something "strange"...

That tremor stops once I relax the facial muscles.
That can be bad :)

Please relax
 
Thank you for the quick replay. And thanks for the encouraging words. I really needed to hear that. I am trying no to think about what I might have. Of course the twitching and the leg cramps constantly remind me of it. But I am trying to keep myself constantly busy.
 
By the way, Saj what do you think is causing the facial tremors ("That tremor stops once I relax the facial muscles") ?
 
By the way, Saj what do you think is causing the facial tremors ("That tremor stops once I relax the facial muscles") ?

BFS or BFCS. I have had that off and on for a couple of years. Spiderweb feeling across face, a little spot tingling or tickling, and tongue twitches. My tongue has twitched, where I can feel it, for at least 7 years. It has been very off and on, but sometimes goes for days.

And I don't have ALS.

Best wishes.
 
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