Still twitching and weak

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Lavender Lady

Distinguished member
Joined
Jul 6, 2010
Messages
445
Reason
PALS
Diagnosis
08/2010
Country
US
State
WA
City
Lake Stevens
O.k. I have two more weeks until I see the specialist at VM in Seattle. This twitching at times drives me crazy it is constant from the time I wake tell I get to sleep. This weekend I tried to pull the lavender buds off of dried stems and my hand is to weak to hold the stem and pull with the other. The next day after struggling to do about 40 stems my arm muscles hurt for peats sake. This weakness is crazy it was a flower! My legs are losing stamina to walk very far and I am slowing way down. The not knowing is very hard and scary and so will knowing if I do have a terrible disease. I am greaftful for all your posts I keep reading them and it helps.

Thanks, Rox
 
I hope you get some answers during your appointment. I also hope it is good news!
 
Thanks Joel,
I am hoping for a good report trust me. My husband and I are worried because of all my symptoms and a abnormal EMG with weakness getting more profound. Last night we went to a concert and it was all I could do to walk from the car into the venue. I am losing stamina in my legs. I am having twitching in all extremities from time to time but constant in my left arm and hand. Ba hum bug! I want answers but just have to wait.

Rox
 
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