unlegendary
New member
- Joined
- Jul 18, 2010
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- Texas
- City
- Irving
I'm still undiagnosed and the thought of ALS never crossed my mind until a few weeks ago when the doc suggested it might be the case and right about then was when my medical coverages expired so I have to redo that whole thing and that is a major job just to walk into the place.. They performed MRI's and have drained what feels like gallons of blood from me with still no definitive diagnosis.
Anyway..for several years my legs have been weakening more and more, little by little and I indeed get the twitching and spasms and pain and this year I began losing strength in my upper body as well bit by bit and like many, I have some days better than others and whenever I begin to think symptoms are finally gone they all return in spades. The strength in my legs never completely disappears, but some days it's damned tough to get around. Most days I can walk around the back yard, but that's about the limit without using my cane and if I go anywhere away from home i HAVE to take my cane and many times it's not enough. I have a big fear of getting stuck where nobody can help me or even getting stuck in the backyard and just baking out in the hot sun.. Luckily that hasn't happened yet. A little over a year ago I was lifting appliances up onto my truck barehanded. Today I all but had to drag a watermelon from the car to the back yard.
I'm a caregiver for an elderly woman who has severe arthritis in her knees so she's extremely limited in her own movement and I stay in a small building in her back yard so the thing I worry all the time about is the day when I can no longer move on my own and there will be nobody to care for her..or me for that matter. What we'll do I still don;t have a clue.
The grass in the front yard I can no longer cut and neither of us can pay someone to cut it so now we're really getting stuck and have no clue what to do anymore.
Still, all in all I try to not let my own physical limitations get to me. I worry, but I have yet to get depressed about it..
I just don't know where to go next with it all..
Anyway..for several years my legs have been weakening more and more, little by little and I indeed get the twitching and spasms and pain and this year I began losing strength in my upper body as well bit by bit and like many, I have some days better than others and whenever I begin to think symptoms are finally gone they all return in spades. The strength in my legs never completely disappears, but some days it's damned tough to get around. Most days I can walk around the back yard, but that's about the limit without using my cane and if I go anywhere away from home i HAVE to take my cane and many times it's not enough. I have a big fear of getting stuck where nobody can help me or even getting stuck in the backyard and just baking out in the hot sun.. Luckily that hasn't happened yet. A little over a year ago I was lifting appliances up onto my truck barehanded. Today I all but had to drag a watermelon from the car to the back yard.
I'm a caregiver for an elderly woman who has severe arthritis in her knees so she's extremely limited in her own movement and I stay in a small building in her back yard so the thing I worry all the time about is the day when I can no longer move on my own and there will be nobody to care for her..or me for that matter. What we'll do I still don;t have a clue.
The grass in the front yard I can no longer cut and neither of us can pay someone to cut it so now we're really getting stuck and have no clue what to do anymore.
Still, all in all I try to not let my own physical limitations get to me. I worry, but I have yet to get depressed about it..
I just don't know where to go next with it all..