Rox, I keep getting the same answer that ALS does not present with sensory issues, but I get so discouraged when I read posts like the following......
"Diagnosed with POSSIBLE ALS"and I am 23...
hello all. I was on here about 4 months ago wondering if ALS could be a possiblity of being an answer to my problems. I received a reply that I was being stupid for wasting somebody's time since I didn't fit all of the criteria. Well I'm back, to tell my story...since I feel that wasn't the end of my journey but the very beginning. The short of it is, I woke up in October, with lack of sensation on my left side. Not numbness, because I could still tell when someone was pushing on my side/sharp/dull pain...it was just decreased from my right side.
A dear friend was just DX
My Mom's best friend for the past 20 something years has always been like my big sister. My mom always said that she raised us together - even though she's only a few years younger than herself. lol Anyway - 15 months ago when my daughter was born she was healthy, in October - she was healthy - by Thanksgiving she was feeling a lot of numbness in her left arm and by Christmas that arm was numb. After a ton of testing she was just diagnosed with ALS.
I also remember reading about bala80 whose symptoms were pretty obscure and he was told repeatedly by members NO ALS. His started with burning in his feet. This 27yo young man was diagnosed and chose to pursue controversial stem cell treatments in China. So you can see where all the confusion and anxiety come from.
Thoughts?
Peace to all,
Amye