Hi everyone
After more than one year living with fasciculations and muscle problems(see previous postings)I have some questions.
It all started with minor muscle twitching i both calves. Visible, but I couldn`t feel them.
Later on it spreaded to my entire body. Feet, legs, thighs, abdomen, back, neck, face.
And now they are very visible and I can feel them all over my body. I can still walk normally, but I had to give up running a year ago because my leg muscles just hurts too much/get sore if I try. My muscles have become very floppy/soft during the past year. Not just in one place but in general.
The fasciculations have changed in size during the past year. Now they sometimes are very large and slower compared to earlier. And occasionally they now can stay in one place for several hours making the muscle jumping-not just small twitches.
Here is my “twitching list”:
Feets: Constant, smaller twitches
Calves: Constant, big twitches
Thighs: Constant feeling of muscle movement-but visible big twitches every 20 sec.
Abdomen: Approx. 10-20 per day
Arms: Approx. 1 per. minute. Big ones. Can stay in one place for hours making a big area jumping up and down.
Back: Approx. 20-30 per day
Neck: Approx. 10-20 per day
Face: Approx. 20-30 per day
Tongue: Happens a few days in a month.
Jaw: 1-5 jaw-spasms every night.
I have suffered from excessive sweating-epecially when sleeping. But also in daytime I sweat abnormally much.
I have no big problems falling a sleep but after 8 hours of sleep I feel totally unrested.
And finally the most of my joints are now cracking/clicking making loud noises when I´m walking.
My questions are:
Have any of you experienced similar development or can you recognise some of the symptoms?
Can MND start/progress so widespread during more than a year?
Is there any other desease that can show these symptoms?
PS: I went to 2 neuros more than a year ago and was told that my fasciculations was “inside the limit” but I am not 100% convinced.
Best wishes,
Mads
After more than one year living with fasciculations and muscle problems(see previous postings)I have some questions.
It all started with minor muscle twitching i both calves. Visible, but I couldn`t feel them.
Later on it spreaded to my entire body. Feet, legs, thighs, abdomen, back, neck, face.
And now they are very visible and I can feel them all over my body. I can still walk normally, but I had to give up running a year ago because my leg muscles just hurts too much/get sore if I try. My muscles have become very floppy/soft during the past year. Not just in one place but in general.
The fasciculations have changed in size during the past year. Now they sometimes are very large and slower compared to earlier. And occasionally they now can stay in one place for several hours making the muscle jumping-not just small twitches.
Here is my “twitching list”:
Feets: Constant, smaller twitches
Calves: Constant, big twitches
Thighs: Constant feeling of muscle movement-but visible big twitches every 20 sec.
Abdomen: Approx. 10-20 per day
Arms: Approx. 1 per. minute. Big ones. Can stay in one place for hours making a big area jumping up and down.
Back: Approx. 20-30 per day
Neck: Approx. 10-20 per day
Face: Approx. 20-30 per day
Tongue: Happens a few days in a month.
Jaw: 1-5 jaw-spasms every night.
I have suffered from excessive sweating-epecially when sleeping. But also in daytime I sweat abnormally much.
I have no big problems falling a sleep but after 8 hours of sleep I feel totally unrested.
And finally the most of my joints are now cracking/clicking making loud noises when I´m walking.
My questions are:
Have any of you experienced similar development or can you recognise some of the symptoms?
Can MND start/progress so widespread during more than a year?
Is there any other desease that can show these symptoms?
PS: I went to 2 neuros more than a year ago and was told that my fasciculations was “inside the limit” but I am not 100% convinced.
Best wishes,
Mads