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twitching_person

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Apr 26, 2010
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Country
BR
State
Bahia
City
Salvador
Male 33 years old.
7 months into this.

Good signs:

I got a clean EMG on my arms when this started.
Got another clean EMG on my four limbs 5 months latter and another clean emg on the same day.
15 days after I got another clean emg on my for limbs.
four clean emgs on total.
Got my reflexes tested by various neurologists and they all say I have normal reflexes and they said I have normal strengh on my muscles but I dont thing they tested much of them.

Bad signs:

Twitching everywhere every time. Almost no twitches on my calves, tons of them on my arms.
Fatigue/heavyness sensation on my right arm. When feeling heavyness the twitches get crazy.
Persistent slow pulse twitches on my fingers and forearms (I twitched for 3 days on my right middle finger non stop).
Constant disconfort on my hand and a Postural tremor on my right index finger acompained by a extreme fatigue sensation before it starts to tremble.
I cant make my twitches stop by moving the joint. They stay even with the muscle contracted.
I cant trigger twitches by making a forcefull contraction of my biceps/triceps;


I dont know if it is a good or bad sign, but the twitches almost stop when I am taking 400mg of Phenytoin per day but the other fatigue/heavyness/pain on my right arm continue.
 
CLEAN EMG=NO ALS Also it does not sound like you have weakness. Twitching is not ALS.
 
I got a clean EMG on my arms when this started.
Got another clean EMG on my four limbs 5 months latter and another clean emg on the same day.
15 days after I got another clean emg on my for limbs.
four clean emgs on total.
Got my reflexes tested by various neurologists and they all say I have normal reflexes and they said I have normal strengh on my muscles but I dont thing they tested much of them.

Congratulations. Why are you here?

Bad signs:

Twitching everywhere every time. Almost no twitches on my calves, tons of them on my arms.
Fatigue/heavyness sensation on my right arm. When feeling heavyness the twitches get crazy.
Persistent slow pulse twitches on my fingers and forearms (I twitched for 3 days on my right middle finger non stop).
Constant disconfort on my hand and a Postural tremor on my right index finger acompained by a extreme fatigue sensation before it starts to tremble.
I cant make my twitches stop by moving the joint. They stay even with the muscle contracted.
I cant trigger twitches by making a forcefull contraction of my biceps/triceps;


I dont know if it is a good or bad sign, but the twitches almost stop when I am taking 400mg of Phenytoin per day but the other fatigue/heavyness/pain on my right arm continue.

What did the neurologists tell you is causing the twitches? Have you seen other doctors about the problems in your arm (such as an orthopedist or a sports medicine specialist? If not, why not? The problem in your arm may not have any relationship to your twitching.
 
Congratulations! You've had enough EMG's to qualify you as a pin cushion!

Looks like you don't have anything like ALS, too.

Congratulations on getting the all-clear from MND!
 
Thank you very much for your attention.

But the problem is that my twitches are very strange. They move my fingers all the time. Some times they are strong enough to flex one of my fingers almost entirely. The pulse twitch is so bizarre. It is not a come and go twitch. It is a constant 1 per second small movement that takes 1 to 3 days to stop.
I think the muscles on my right arm get fatigued very fast. I used to being on the computer for days without my arm getting fatigued. Now, 1 hour using the mouse is enough for me to spend the resting of the day with all the muscles on my arm and shoulder burning.
If I twitched more on my legs and the twitches where come and go. If if had not the muscles issues I am having, it would be easy to cope with this problems, but unfortunatelly this is not the case.
Even with the fatigue/heavyness sensation I can still lift weight and do everything. The only thing I can't do now is keep my right index finger steady for very much time without it starts to tremble like hell.
 
BFS is a very strange thing. Twitches are strange.

It sounds like you have something that's going on and it's affecting your neuromuscular system. The twitches, the fatigue, the odd sensations, the trembling, etc. Those things aren't normal and I totally understand why they upset you. But you shouldn't further upset yourself into thinking these symptoms mean you have ALS. That's crazy. You have a clean EMG, you have no clinical weakness, your doctors don't think you have ALS at all. You shouldn't either.

To be honest, the doctors probably won't be able to figure out what you have. As long as they've taken blood levels and things like that to rule out any obvious problems causing your issues (namely thyroid or vitamin levels) you can move on and shouldn't necessarily expect a diagnosis. There are a lot of people who have what you're describing, but you'll find them on the boards for BFS, not ALS.
 
I began massively twitching back in March of this year, coincidentally the same time I found out my brother had ALS and I found out there was a 10-20% chance it was hereditary. My twitching sounds a lot like yours.
Not long after that my arms began to 'feel' weak and I would take a jacket to work to rest my hands in because my arms felt to heavy to hold up.
Not long after that... I began to notice muscle atrophy in my left arm.
I was 99.9% convinced I had ALS.

After about 3 weeks of a deep dark depression I began to follow some tips on how to control worry and also my doctor started me on citalopram (anti depressant/anxiety).
Eventually my twitching has almost become non-existant though I still have some trembling in my fingers when I hold them a certain way.
The weakness in my arms is gone.
The muscle atrophy was non-existant, a cpk test showed that I clearly in the normal range and was not losing muscle.

Paranoia will do crazy things to you.
 
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