seanoc1
Member
- Joined
- May 28, 2010
- Messages
- 11
- Reason
- Learn about ALS
- Country
- US
- State
- WA
- City
- Seattle
Sorry for the long post. I need help on what next to do.
I started having tingling and numbness in my left hand and the left side of my face. I called my GP and they sent me to the ER. After 4 hours, a CAT scan and an MRI. They ruled out stroke and tumor. They referred me to a Neurologist.
Two weeks later I met with the Neurologist who performed some tests on me. I was sent to get a Neck MRI. The MRI came out clear. I made an appointment for follow up in 3 weeks.
In that time, I started getting tingling and numbness in my right arm and both legs.
At the appointment, the neurologist did the same tests (keep me from pushing arms etc.) There was noticeable weakness in my left arm. During the test my left hand started trembling. The neurologists ordered another Head MRI.
Now not all MRI machines are created equal. My original MRI was done on a 1.5 Tesla unit. The new MRI was being done on a 3 tesla unit.
The result-the MRI was clear. Next step Spinal Tap.
My symptoms are also getting worse. My forearms and back of the neck are lightly cramping. Muscles are beginning to twitch at very strange times. If I hold anything in my left hand, the trembling is really noticeable.
I get my spinal tap and am bed ridden for a couple of days.
Yesterday, I got my results. My spinal tap is clear. No MS, no Lyme disease, no cancers.
My neurologist is stumped. She said she would not be opposed to a second opinion.
Here is where I need help. What questions should I be asking? What tests should I request to be done?
I know I probably do not have ALS (I hope). From the reading I have done I know it can take a long time to diagnose.
I just do not know where to go from here.
Thanks for reading.
Sean
I started having tingling and numbness in my left hand and the left side of my face. I called my GP and they sent me to the ER. After 4 hours, a CAT scan and an MRI. They ruled out stroke and tumor. They referred me to a Neurologist.
Two weeks later I met with the Neurologist who performed some tests on me. I was sent to get a Neck MRI. The MRI came out clear. I made an appointment for follow up in 3 weeks.
In that time, I started getting tingling and numbness in my right arm and both legs.
At the appointment, the neurologist did the same tests (keep me from pushing arms etc.) There was noticeable weakness in my left arm. During the test my left hand started trembling. The neurologists ordered another Head MRI.
Now not all MRI machines are created equal. My original MRI was done on a 1.5 Tesla unit. The new MRI was being done on a 3 tesla unit.
The result-the MRI was clear. Next step Spinal Tap.
My symptoms are also getting worse. My forearms and back of the neck are lightly cramping. Muscles are beginning to twitch at very strange times. If I hold anything in my left hand, the trembling is really noticeable.
I get my spinal tap and am bed ridden for a couple of days.
Yesterday, I got my results. My spinal tap is clear. No MS, no Lyme disease, no cancers.
My neurologist is stumped. She said she would not be opposed to a second opinion.
Here is where I need help. What questions should I be asking? What tests should I request to be done?
I know I probably do not have ALS (I hope). From the reading I have done I know it can take a long time to diagnose.
I just do not know where to go from here.
Thanks for reading.
Sean