Alexandre
Active member
- Joined
- Jun 2, 2009
- Messages
- 91
- Reason
- Learn about ALS
- Country
- FRA
- State
- Paris
- City
- Paris
Hi all,
Yes it's me again, I'm sorry.
4th May , I thought I was really getting some answers and a new emg and a final diagnosed.
I arrived at the hospital and I really hoped I was going to see the big ALS specialist. But instead I got a assistant( 2nd year neuro student). All his assistents are neuro students.
They work like this: they examen you, go to the professor, tell him would they found, he tells what he thinks it is and what should happen.
So she examens me and found:
- brisk reflexes in all 4 parts ( I asked if this were hyperreflexes, she said yes but within normal limits - don't understand that) even a slight increase of reflexes on tendens (or something like that)
- Shown her the dent in my hand, didn't think it was real atrophy because I don't show weakness
- No babinski or clonus
- Tremor in right hand (my hand and arm is shaking really badly lately, I thought it was clonus she said not)
She concluded that clincially they are not concerned for MND 'at the moment'
I'm completely lost with this, in my opinion, and I know I'm not a neuro I got upper and lower signs.
- 24/7 twitching in 1st dorsal interosseus in both hands
- hyper reflexes
- increase of cramps (had 2 night cramps in 2 weeks time and today the whole day cramping in both legs - not full blown)
- some kind of atrophy in hand
They only thing I don't have or notice is real weakness.
She said a new emg was not necesarry.
It's been going on now for 2.7 years.
They keep diagnosed on BCFS but it this it?
I read a couple of stories here lately of neuro's telling it surely isn't als but afterall it was.
What do you guys think of all this? Do I really need to worry, push for more or is it really BCFS, also possible with this non stop twitching in hands (and calves)
Someone, please?
Thanks
Yes it's me again, I'm sorry.
4th May , I thought I was really getting some answers and a new emg and a final diagnosed.
I arrived at the hospital and I really hoped I was going to see the big ALS specialist. But instead I got a assistant( 2nd year neuro student). All his assistents are neuro students.
They work like this: they examen you, go to the professor, tell him would they found, he tells what he thinks it is and what should happen.
So she examens me and found:
- brisk reflexes in all 4 parts ( I asked if this were hyperreflexes, she said yes but within normal limits - don't understand that) even a slight increase of reflexes on tendens (or something like that)
- Shown her the dent in my hand, didn't think it was real atrophy because I don't show weakness
- No babinski or clonus
- Tremor in right hand (my hand and arm is shaking really badly lately, I thought it was clonus she said not)
She concluded that clincially they are not concerned for MND 'at the moment'
I'm completely lost with this, in my opinion, and I know I'm not a neuro I got upper and lower signs.
- 24/7 twitching in 1st dorsal interosseus in both hands
- hyper reflexes
- increase of cramps (had 2 night cramps in 2 weeks time and today the whole day cramping in both legs - not full blown)
- some kind of atrophy in hand
They only thing I don't have or notice is real weakness.
She said a new emg was not necesarry.
It's been going on now for 2.7 years.
They keep diagnosed on BCFS but it this it?
I read a couple of stories here lately of neuro's telling it surely isn't als but afterall it was.
What do you guys think of all this? Do I really need to worry, push for more or is it really BCFS, also possible with this non stop twitching in hands (and calves)
Someone, please?
Thanks