morningdew
Active member
- Joined
- Apr 22, 2010
- Messages
- 50
- Reason
- PALS
- Country
- AUS
- State
- WA
- City
- WA
Hello, everyone,
I 've been following your forums for weeks, but have only just felt ready to take part.
I'm going into hospital for tests on 27 June, so the doctors are taking it seriously. I went to my GP about my cramps, weak feet, and fasciculations, and he had me booked in under a neurolologist who specialises in the motor neuron diseases by the following day.
I've had very bad cramps for about a year, experienced weakening feet at the end of February, started fasciculations soon after that, especially noticeable visually on the soles of my feet, but all over both legs.
Now I keep telling myself it's my imagination, but my arms seem strange, especially the left one. It didn't want to wash my hair this morning, and it aches and tingles a lot, in varying places, and feels heavy from the shoulder. I'm noticing a few twitches in my hands/arms and ,strangely, my abdomen. Surely it would be unusually fast if my arms go already?
I'm 75, and ready for what eventuates.I've had a good life. (But of course I'm scared.) I'm so sorry for younger people who are suffering these dread diseases.
I have seen one specialist already, a general physician, but he told me a) If it was ALS I wouldn't be able to feel the fasciculations b) If it was ALS it would be symmetrical, and my left foot is worse than the right c) If it was ALS the fasciculations would be so frequent he wouldn't have to wait to see them.
My reading makes me feel he may not be right? Anyway, I'm not really reassured by what he says.
I'm speaking from Australia. I have been finding find you all so helpful even though I have been a silent listener. Thank you.
Joan
I 've been following your forums for weeks, but have only just felt ready to take part.
I'm going into hospital for tests on 27 June, so the doctors are taking it seriously. I went to my GP about my cramps, weak feet, and fasciculations, and he had me booked in under a neurolologist who specialises in the motor neuron diseases by the following day.
I've had very bad cramps for about a year, experienced weakening feet at the end of February, started fasciculations soon after that, especially noticeable visually on the soles of my feet, but all over both legs.
Now I keep telling myself it's my imagination, but my arms seem strange, especially the left one. It didn't want to wash my hair this morning, and it aches and tingles a lot, in varying places, and feels heavy from the shoulder. I'm noticing a few twitches in my hands/arms and ,strangely, my abdomen. Surely it would be unusually fast if my arms go already?
I'm 75, and ready for what eventuates.I've had a good life. (But of course I'm scared.) I'm so sorry for younger people who are suffering these dread diseases.
I have seen one specialist already, a general physician, but he told me a) If it was ALS I wouldn't be able to feel the fasciculations b) If it was ALS it would be symmetrical, and my left foot is worse than the right c) If it was ALS the fasciculations would be so frequent he wouldn't have to wait to see them.
My reading makes me feel he may not be right? Anyway, I'm not really reassured by what he says.
I'm speaking from Australia. I have been finding find you all so helpful even though I have been a silent listener. Thank you.
Joan