hi everyone,
I haven't posted anything for awhile just to get any thoughts of ALS out of my head. I'm in rough shape and a few things have progressed that scare me.
1. I wake up 2-3 times per night and can't get back to sleep
2. My head has pressure in front and sides all the time.
3. My hands are numb during the night and wakes me up
4. My knees hurt going up and down stairs
5. My throat hurts-feels like a lump in it- but can chew and swallow
6. My arms and hands hurt in morning -get a little better during day
7. I wake up with a shortness of breath
8. tired all day
9. Neck muscles have shrunk- lots of movement in adams apple area
10. voice is hoarse
11. arms/legs skinny as well as neck
12. Left shoulder joints hurts very much
13. Face is thinner looking
14. When I lean over my chest just sags there and I'm not fat
15. Tongue has big groove on left side and feels floppy-neuro said it looked ok- he said they look at top of tongue for problems
16. Have arthritis in cerival spine
17.muscles very soft
On Feb 9 2010 had an emg. He checked muscles in left shoulder/bicep and hand and did Nerve test. Neuro said he's done 2 emgs and hasn't found anything that looks bad. I going to see if I can see a specalist to put this out of my mind for good or see what is going on.
Any input would much appreciated.
I wish I wasn't posting here again
I haven't posted anything for awhile just to get any thoughts of ALS out of my head. I'm in rough shape and a few things have progressed that scare me.
1. I wake up 2-3 times per night and can't get back to sleep
2. My head has pressure in front and sides all the time.
3. My hands are numb during the night and wakes me up
4. My knees hurt going up and down stairs
5. My throat hurts-feels like a lump in it- but can chew and swallow
6. My arms and hands hurt in morning -get a little better during day
7. I wake up with a shortness of breath
8. tired all day
9. Neck muscles have shrunk- lots of movement in adams apple area
10. voice is hoarse
11. arms/legs skinny as well as neck
12. Left shoulder joints hurts very much
13. Face is thinner looking
14. When I lean over my chest just sags there and I'm not fat
15. Tongue has big groove on left side and feels floppy-neuro said it looked ok- he said they look at top of tongue for problems
16. Have arthritis in cerival spine
17.muscles very soft
On Feb 9 2010 had an emg. He checked muscles in left shoulder/bicep and hand and did Nerve test. Neuro said he's done 2 emgs and hasn't found anything that looks bad. I going to see if I can see a specalist to put this out of my mind for good or see what is going on.
Any input would much appreciated.
I wish I wasn't posting here again