I first want to say how sorry I am for those of you who have been diagnosed with this horrible disease and those of you who are facing possibilities of having it. This is a horrible thing and I know it is very terrifying. Even if I do NOT have this disease I want to become a supporter and do everything I can to find a cure.
I am a 36 year old female with 3 kids and the thought of having this is wreaking havoc on my life. I feel like I have not spent any time with my kids since I started researching this and I feel really guilty and horrible about that. I have been having some symptoms for a few months now:
1. The first symptom I noticed was a localized pain in my left calf muscle. Just a slight pain, almost like an internal bruise but I could not feel it when I tried to feel around. I honestly thought it was a DVT.
2. Then that same calf muscle started twitching and now the twitching is pretty much non-stop. Now I have twitching in my other calf muscle and my quads and hamstrings. I also notice twitching everywhere else now that I am aware of it.
3. I also notice that I hold my muscles rigid sometimes without knowing it, my primary doctor was trying to test my reflexes and he had to tell me to relax my muscles. (had no clue I was tensed up)
4. I do not have any weakness that I have noticed (and neither did my primary Dr.) but now that I am so scared I think I may have "percieved" weakness in my hands. My hands are not weaker physically but they feel like jello and almost shaky but not physically shaky. Does that make sense?
5. For the last couple of days I feel internally shaky like I am having internal tremors, especially when I wake up in the morning and from a nap. ( I am not physically shaking, just feels like it.) When I do wake up my physical twitches are like a symphony of twitches everywhere.
6. I am terrified because my mother had a undiagnosed neurological problem 20 years ago. (My mom passed away at the age of 44) She had occasional seizures and a muscle in her left cheek and one in her left back collapsed and was sunken in. She never had any loss of function and again they did not diagnose anything specific. She had NUMEROUS health problems including kidney disease and/transplant.
So judging by my symptoms and history what do you all think?
All I know is that I have never been so terrified in my whole entire life. I am getting an MRI of my lower back today because my primary doctor thinks maybe I have a pinched sciatica. I hope that is all it is, that would be so nice........ Thank you in advance for anyone reading this, I appreciate your time.
Lisa
I am a 36 year old female with 3 kids and the thought of having this is wreaking havoc on my life. I feel like I have not spent any time with my kids since I started researching this and I feel really guilty and horrible about that. I have been having some symptoms for a few months now:
1. The first symptom I noticed was a localized pain in my left calf muscle. Just a slight pain, almost like an internal bruise but I could not feel it when I tried to feel around. I honestly thought it was a DVT.
2. Then that same calf muscle started twitching and now the twitching is pretty much non-stop. Now I have twitching in my other calf muscle and my quads and hamstrings. I also notice twitching everywhere else now that I am aware of it.
3. I also notice that I hold my muscles rigid sometimes without knowing it, my primary doctor was trying to test my reflexes and he had to tell me to relax my muscles. (had no clue I was tensed up)
4. I do not have any weakness that I have noticed (and neither did my primary Dr.) but now that I am so scared I think I may have "percieved" weakness in my hands. My hands are not weaker physically but they feel like jello and almost shaky but not physically shaky. Does that make sense?
5. For the last couple of days I feel internally shaky like I am having internal tremors, especially when I wake up in the morning and from a nap. ( I am not physically shaking, just feels like it.) When I do wake up my physical twitches are like a symphony of twitches everywhere.
6. I am terrified because my mother had a undiagnosed neurological problem 20 years ago. (My mom passed away at the age of 44) She had occasional seizures and a muscle in her left cheek and one in her left back collapsed and was sunken in. She never had any loss of function and again they did not diagnose anything specific. She had NUMEROUS health problems including kidney disease and/transplant.
So judging by my symptoms and history what do you all think?
All I know is that I have never been so terrified in my whole entire life. I am getting an MRI of my lower back today because my primary doctor thinks maybe I have a pinched sciatica. I hope that is all it is, that would be so nice........ Thank you in advance for anyone reading this, I appreciate your time.
Lisa