colindman
New member
- Joined
- Jan 24, 2010
- Messages
- 9
- Reason
- Learn about ALS
- Country
- US
- State
- Wisconsin
- City
- Saint Francis
Hi everyone,
I'm a 22 year old and I've been trying to avoid doing this for as long as possible because I feel terrible that I'm just worrying about having this while people on this forum actually do have it. It makes me feel insensitive and I really do apologize. Unfortunately, lately the anxiety has gotten overwhelming and it's seriously affecting my life. I really do apologize if you find this post disrespectful.
Sometimes I get caught up on my words and they get jumbled about. Every now and then a T sound will come out wrong. "To do tonight" will come out as "To do donight" or "Too tonight." This always comes and goes and I'm never sure if it's because I'm talking to fast or if it's actual slurring, but I can always pronounce my T's later just fine until it happens again. I also think I may have a lisp with my S's, although this may have always been there.
I also have a constant feeling of phlegm in my throat. But I have no issues swallowing or chewing and I don't have any issues with biting my tongue. I do however yawn excessively, but I'm fairly certain I've always done this. Sometimes I feel like I'm being overly emotional when I'm just sitting down, but this may very well just be the anxiety I'm experiencing.
My tongue can move all around my mouth just fine and it can touch all my teeth on both sides. It appears pretty even besides small toothmarks on the side and a small indent in the middle, although these may very well have always been there. I just haven't obsessed over my tongue until now.
Unrelated to ALS but maybe important anyways, my jaw has always made a clicking noise whenever I chew. Also, I have bodywide fasciculations, but I'm pretty sure this is just stress related.
I've been to a neurologist once before but he dismissed me before I could really discuss my concerns. Actually, he made me feel kind of stupid and laughed when I said I was worried about ALS. Not the greatest doctor in my opinion, but my insurance will cover little else.
You are all so strong and I don't know how you manage to move forward from day to day. Just worrying about it has nearly paralyzed me on many many days.
Thanks for any help you can provide,
Colin
I'm a 22 year old and I've been trying to avoid doing this for as long as possible because I feel terrible that I'm just worrying about having this while people on this forum actually do have it. It makes me feel insensitive and I really do apologize. Unfortunately, lately the anxiety has gotten overwhelming and it's seriously affecting my life. I really do apologize if you find this post disrespectful.
Sometimes I get caught up on my words and they get jumbled about. Every now and then a T sound will come out wrong. "To do tonight" will come out as "To do donight" or "Too tonight." This always comes and goes and I'm never sure if it's because I'm talking to fast or if it's actual slurring, but I can always pronounce my T's later just fine until it happens again. I also think I may have a lisp with my S's, although this may have always been there.
I also have a constant feeling of phlegm in my throat. But I have no issues swallowing or chewing and I don't have any issues with biting my tongue. I do however yawn excessively, but I'm fairly certain I've always done this. Sometimes I feel like I'm being overly emotional when I'm just sitting down, but this may very well just be the anxiety I'm experiencing.
My tongue can move all around my mouth just fine and it can touch all my teeth on both sides. It appears pretty even besides small toothmarks on the side and a small indent in the middle, although these may very well have always been there. I just haven't obsessed over my tongue until now.
Unrelated to ALS but maybe important anyways, my jaw has always made a clicking noise whenever I chew. Also, I have bodywide fasciculations, but I'm pretty sure this is just stress related.
I've been to a neurologist once before but he dismissed me before I could really discuss my concerns. Actually, he made me feel kind of stupid and laughed when I said I was worried about ALS. Not the greatest doctor in my opinion, but my insurance will cover little else.
You are all so strong and I don't know how you manage to move forward from day to day. Just worrying about it has nearly paralyzed me on many many days.
Thanks for any help you can provide,
Colin