jiujitsu
Member
- Joined
- Feb 7, 2010
- Messages
- 26
- Reason
- Learn about ALS
- Country
- US
- State
- FL
- City
- Boca Raton
I am a 33 year old male. In April of 2009 I had back to back stomache viruses. One week apart to be exact. Shortly after that I started to develope severe nocturnal myclonus. Then about 1 week later I started to twitch in left bicep, it lasted about three days and then dissapeared. The twitching quickly spread throughout my body in a matter of days. When I say it is everywhere I mean it. It waxes and wanes in severity and frequency, but seems to be there all the time to some degree. Now I have always had random muscle twitches since I was a kid, but never anything like this. I saw neuro about 6 weeks later and got the all clear. Had all the tests, I mean everything you can think of. Most important the MRI of brain and EMG/NCV came back perfect. Diagnosis was BFS.
In June I was having problems with tingling, tightness and electric shocks in back. Got mri of cervical and lumbar. Cervical showed 4 herniations with cervical stenosis and loss of lordosis (curvature of the cervical). Lumbar came back fine. Said the twitching was not because of this and again diagnosed with BFS.
About two weeks ago I had a follow up EMG/NCV this time by a Dr. who specializes in ALS. They found a bilateral root dysfunction in L5/S1 with chronic changes, but no current ongoing changes. Which surprises me because Lumbar MRI came back fine. Again they want to follow up, but say I have nothing to worry about at "this time".
So in conclusion I have twitched for about 10 months all over and have the one EMG finding. The nocturnal myclonus seemed to resolve for the most part on its own. I do not have any real weakness, but I do feel muscle fatigue sometimes off and on when previously I would not have. I have trained Jiu-jitsu/MMA for about 8 years and do teach and compete. Lately I have noticed that I get injured more easily and the injuries take a long time to heal. I have broke ankles, ribs, torn knees etc. and I am always back training within a week. Now I run for a little and have ankle pain when finished. Not the same ankle for all those who are thinking injury .
I do have a history of health anxiety and am on medication for it. I do have some other sensory issues from time to time like feeling of spider webs on face and body when there is nothing there, burning sensations in legs, sensation of bugs crawling on legs when there is nothing there etc.
With the symptoms I have would you as a rational person put the ALS thing to bed? I have had 5 people, none of which are realted and don't live in the same area diagnosed with ALS in the past 3 years so my anxiety is very high.
In June I was having problems with tingling, tightness and electric shocks in back. Got mri of cervical and lumbar. Cervical showed 4 herniations with cervical stenosis and loss of lordosis (curvature of the cervical). Lumbar came back fine. Said the twitching was not because of this and again diagnosed with BFS.
About two weeks ago I had a follow up EMG/NCV this time by a Dr. who specializes in ALS. They found a bilateral root dysfunction in L5/S1 with chronic changes, but no current ongoing changes. Which surprises me because Lumbar MRI came back fine. Again they want to follow up, but say I have nothing to worry about at "this time".
So in conclusion I have twitched for about 10 months all over and have the one EMG finding. The nocturnal myclonus seemed to resolve for the most part on its own. I do not have any real weakness, but I do feel muscle fatigue sometimes off and on when previously I would not have. I have trained Jiu-jitsu/MMA for about 8 years and do teach and compete. Lately I have noticed that I get injured more easily and the injuries take a long time to heal. I have broke ankles, ribs, torn knees etc. and I am always back training within a week. Now I run for a little and have ankle pain when finished. Not the same ankle for all those who are thinking injury .
I do have a history of health anxiety and am on medication for it. I do have some other sensory issues from time to time like feeling of spider webs on face and body when there is nothing there, burning sensations in legs, sensation of bugs crawling on legs when there is nothing there etc.
With the symptoms I have would you as a rational person put the ALS thing to bed? I have had 5 people, none of which are realted and don't live in the same area diagnosed with ALS in the past 3 years so my anxiety is very high.